HOW DID IT START
The World Spina Bifida and Hydrocephalus Day (WSBHD) has been established and designated by IF’s General Assembly in Guatemala 2011 with the aim of raising awareness and understanding about Spina Bifida and Hydrocephalus. It serves also as means to advocate and promote the rights of persons with these conditions.
WHY SHOULD YOU GET INVOLVED
As in previous WSBHD editions, we will promote an active awareness campaign on social media: sharing posters, key messages, relevant events around the topic, hashtags, banners.
We need your support to reach as many people as possible who may want to submit their testimonies and photo in order to show our members’ perspective on IF’s evolution and work.
WSBHD 2020: United in COVID-19
The lives of all persons around the world have somehow been impacted by COVID-19 from an economic, social and/or health point of view, among other aspects. The SBH community has not been an exception. For that reason, IF selected the theme ‘WSBHD20: united in times of COVID-19’, in order to focus on the experiences of the SBH community during the coronavirus pandemic. We also invite you to join the #HappyWSBHD challenge. Download the Social Media Toolkit to learn how you can help raise awareness on this special day!
- 2012: Event at the European Parliament in Strasbourg
- 2013: Launch of the PUSH! platform
- 2014: 25 Facts about Spina Bifida and Hydrocephalus
- 2015: Did you know…
- 2016: Launch of the IF Global Prevention Initiative at the IF conference in Belgium
- 2017: A focus on mental health
- 2018: Spina Bifida and Hydrocephalus throughout the lifespan
- 2019: The Full Picture