It is a pleasure to introduce you the first IF International Youth Group including the following members: Mirela Bukovac, Elisa Garcia de Ceca, Cillian Dunne, Patrícia Albertová, Parth Hendre, Rereloluwa Adeola, Saad Mouhdi, Rebecca Austin, Opeyemi Folorunsho Samuel, Danielle Tate and Wilson Padilla and chaired by Marcus Ward. The primary aim of the group is to bring a group of young people with spina bifida and/or hydrocephalus (SBH) together from all around the world who want to work together with IF in addressing important issues relevant for youth with SBH around the world.
Due to the COVID-19 situation, IF had to think of a new way of working. Given the global pandemic of COVID-19, IF received requests from members associations worldwide to form an international youth group. In this way, IF facilitates a platform for youth to meet and serves as an advisory panel for IF’s work going forward.
The mission of the group is to mobilize the SBH youth community and bring together resources available in order to contribute to actively raise awareness on important topics related to well-being and quality of life; develop tools to support youth around the world; disseminate information and materials to support the work undertaken by young people in different countries around the world.
This year, special attention will be given to the topics of mental health and well-being. Read more about the work of the International Youth Group below. This page will be updated with activities throughout the year.
- Mental Health
Maintaining a good Mental Health especially in times of a global pandemic is of utmost importance. The IF International Youth Group develops a survey to build up a solid basis of evidence on what is important for young people with SBH about their mental health. This survey addresses the following aspects General Well-Being; Exercice/sports; Friendship/Relationship; Daily activities (e.g, employment, studies); Physical Health; Body Confidence.
- Raising Awareness during the International Youth Day
On August 12, IF together with the United Nations, members and partners celebrated the International Youth Day through a wonderful campaign on social media.
The International Youth Day is a special day for the young community to express themselves. On this occasion, the IF International Youth Group created a toolkit and challenged members to take part in their “Pandemic through the eyes of a young person with SBH” challenge which encountered great success!
The IF International Youth Group’s chairman, Marcus Ward, sent a call on IF Social Media Channels, which you can see here.
The IF International Youth Group in collaboration with the Argentina Youth Group shared personal messages on IF Social Media, see here.
Check IF Social Media out for more!
- The International Conference on Multidisciplinary Care for SBH
IF International Youth Group Chairman, Marcus Ward, shared the results of the Mental Health survey the group conducted earlier this year.
He emphasised on the fact that overall mental health and well-being are important and a special attention needs to be given to youth with SBH. It is necessary to improve the tools used to assess the needs of young adults with SBH.
If you want to learn more about the conference and the speech of IF International Youth Group, Marcus Ward, click here
- Raising awareness during the World Mental Health Day
On October 10th, the world celebrates the important topic of Mental Health. The Day provides an opportunity for individuals with SBH, their families, IF member associations, and healthcare professionals working on mental health issues to talk about this important topic.
Together we can assess needs to make mental health care a reality for people worldwide.
The IF International Youth Group, shared a toolkit, their personal testimonies, thoughts and view on Mental Health and through social media, participated on this day to raise awareness on Mental Health among young adults with SBH. Check out IF Social Media accounts (@IFSBH) to see more about their personal messages.
If you have any questions, don’t hesitate to contact, IF Project Manager, Selma Cela at firstname.lastname@example.org