Latest news Ageing (12) Community Building (50) Developing Countries (22) Europe (65) Human Rights (102) Hydrocephalus (53) International Solidarity (28) Network Development (55) Prevention (56) Right to Health (64) Sexuality (7) SkiForAll (4) Spina Bifida (72) Vacancy (3) WSBHD (20) Youth (22) 16 September 2019 IF analysis on the new European Commission IF has developed an analysis on which new commissioners are key for the spina bifida and hydrocephalus community. Take a look! Read more 16 July 2019 IF represented at the EPF STYPA! IF participated at EPF STYPA 2019 edition organised in Vienna from 7-10 July 2019! The main focus was on ethical dilemmas and evolution of patient advocacy. Read more 1 July 2019 IF joins Global WHO Birth Defects Technical Working Group IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally Read more 28 May 2019 Universal Health Coverage: Including Rare Diseases to leave no one behind During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage. Read more 22 May 2019 IF Secretary General re-elected in EURORDIS Board of Directors IF is very happy to announce that our Secretary General has been re-elected in the Boards of Directors of EURORDIS, which is now focusing on promoting holistic care for people living with rare diseases all over Europe. Read more 9 May 2019 'SKI FOR ALL' project: guidelines Promoting inclusive ski lessons for youth with physical disabilities to learn new skills, build confidence, and improve health for all. Read more Previous Page Next Page