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The International Federation for Spina Bifida and Hydrocephalus (IF) is an active member of the Coalition to Protect The Right to Family Life for All Children. In 2019 the Coalition published a statement on the right to family of children without parental care.

The COVID-19 pandemic continues to have a profound impact on communities across the world and individuals with spina bifida and/or hydrocephalus (SBH) and their families have seen pre-existing barriers to full societal inclusion increase and new challenges emerge. 

IF has published a statement outlining its recommendations to the EU institutions, Member State governments and IF Member Associations for the effective implementation of the European Union Strategy for the Rights of Persons with Disabilities.

IF congratulates Professor Quinn on his appointment as UN Special Rapporteur on the Rights of Persons with Disabilities and the new members of the Committee on the Rights of Persons with Disabilities.

On 7th of December 2020 IF was joined by the European Disability Forum, the European Network for Independent Living and MEP Stelios Kympouropoulos for an online event on disability rights and sexual health. 

IF recently published a position paper with recommendations to ensure that the implementation of the Multiannual Financial Framework (MFF) of the EU advances the rights of individuals with SBH within and beyond the EU.