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We are looking for young people (18-35) living with SBH in Europe who want to become more self-confident and independent!

Contribute to our exploratory European study on ageing with spina bifida and hydrocephalus!

On12-14 June, IF Secretary General Lieven Bauwens was in New York for the 12th session of the Conference of State Parties (COSP) on the Convention on the Rights of Persons with Disabilities (CRPD), an annual event focused on discussing the progress on the implementation of the CRPD.

IF, together with five other organisations working in disability rights, sent an open letter to the Romanian government expressing grave concerns about the violations of human rights of young persons with disabilities in Romanian institutional care.

IF’s response focuses on the key role of medical education in the primary prevention of neural tube defects and with regard to care for persons with spina bifida and hydrocephalus (SBH).

On 18-19 May, IF was in Belgrade for its first European workshop of 2019. Prevention, human rights, sexuality and ageing with SBH were some of the topics addressed during this intensive workshop!