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The IF International Youth Group SBH was present during the Independent Living Day at the European Parliament, Brussels. An important day to raise awareness on the topic of independent living: “Every person has the right to live where he wants, with whom he wants. Everyone has the right to manage his own life” - Kateryna Shcherbyna.

On April 21, 2023, the International Federation for Spina Bifida and Hydrocephalus held its spring webinar titled "Women with Disabilities in Conflict and Crisis" with the aim of better understanding the risks and vulnerabilities faced by women in conflicts and crises as well as the opportunities and resources available to support women and girls with disabilities who are impacted by conflicts and crises.

The International Federation for Spina Bifida and Hydrocephalus (IF) is looking forward to celebrating the upcoming awareness days: International Day of Persons with Disabilities (IDPD) and the European Day of Persons with Disabilities (EDPD).

With a new IF statement, The International Federation for Spina Bifida and Hydrocephalus (IF) is calling for urgent action demanding universal mandatory food fortification with vitamin B9 (folic acid) to reduce the risk of Spina Bifida, Anencephaly, or Encephalocele, also called Neural Tube Defects (NTDs).

On August 11 2022, The IF International Youth SBH Meeting: Independent Living in Your Eyes was organised by the IF International Youth Group SBH.

The Committee on the Rights of Persons with Disabilities (CRPD) opened a call for submissions in June 2022. The call was for comments and suggested amendments to the ‘Draft Guidelines on Deinstitutionalization, including in emergencies’.