IF has published a statement on ageing with Spina Bifida and Hydrocephalus (SBH).

Improvements in treatment and care means that there is a growing population of older people with SBH. The IF Working Group on Ageing with Spina Bifida and Hydrocephalus has been exploring the needs and challenges faced by individuals with lived experiences of ageing with SBH.

This work has revealed emerging concerns regarding physical and mental health as well access to multidisciplinary care, employment and more.

In this statement IF and the IF Working Group on Ageing outlines its recommendations to advance and safeguard the rights of individuals experiencing ageing with SBH, to support the development of appropriate services such as multidisciplinary care and person-centred social care.

You can read the IF Statement on Ageing with Spina Bifida and Hydrocephalus here.