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Established by the UN, August 12th has marked the celebration of International Youth Day (IYD) as a valuable opportunity for youth around the world to address the challenges they face and to advocate for meaningful change. To celebrate this important day, the IF International Youth Group SBH organised a webinar under the theme 'Dreaming Beyond Barriers’, bringing together young people with disabilities and youth activists from across the globe to discuss ways to advocate for a more inclusive future.

Designated by the United Nations, August 12th marks International Youth Day - a global celebration that brings the world together to raise awareness of the cultural and legal issues affecting young people.

The 2024 Annual Report highlights significant achievements in advancing human rights, primary prevention, optimising care, raising awareness, and fostering international solidarity. A major milestone was the 30th International Conference on Spina Bifida and Hydrocephalus in Kuala Lumpur, Malaysia, which focused on bridging gaps in healthcare and prevention through a community-centred, multidisciplinary approach.

Warsaw, 30 June 2025 – In a strong show of solidarity and commitment to the rights and inclusion of persons with disabilities, a Declaration supported by 25 EU Member States was prepared during the Polish Presidency of the Council of the European Union.

IF welcomes the WHO Consultation for the updated version on the Assistive Products Priority List (APL), in particular that it acknowledges catheters, and related accessories, as essential assistive products for persons living with Spina Bifida and Hydrocephalus (SBH).

Several IF member associations have expressed interest in hosting the 32nd International Spina Bifida and Hydrocephalus Conference in the fall of 2028. If your organisation is chosen to host the IF conference 2028, the IF Board of Directors will work closely with you to ensure smooth planning of the conference. We need some information from you to ensure that we can make the best choice of a host.