BOSK Work Group Spina Bifida & Hydrocephalus


BOSK is the association of people with spina bifida. We know what it is to live with and raise a child with spina bifida. Own strength and their own choices are central in our work.

You don’t live with spina bifida by yourself. You live with others, and others are important for your strength, vitality and opportunities. Therefore BOSK is also from and for parents, siblings, grandparents, friends and partners.

“Knowledge through experience” is our foundation. Who knows better how it is to live with spina bifida than you? This association is the place where people with spina bifida and parents of a child with spina bifida can find this knowledge and share experience.

BOSK uses the experiential knowledge to support people with spina bifida, and to defend the interests of people with spina bifida in politics, with health care providers and insurers.

By sharing knowledge and experience about living with spina bifida, together we increase our strength and capabilities.