The Association has been established with the purpose to prove the quality of life of males and females (preferably) with spina bifida and hydrocephalus. We professionally accompany families where a child with SBH was born. We care and share information where possible about prevention, we increase knowledge, build leadership and self-management. We create a network between professionals and parents. We care that children with SBH may be integrated into society via accessibility and education system on all levels. We care that the children with a disability may smoothly transfer to adulthood with all responsibility and freedom and self-confidence. We support them in all areas of the life cycle. We care about independent life in the individual and social area. We gather and motivate volunteers to work with purpose.