The Association of Spina Bifida and Hydrocephalus (ASBH) was founded in 1966. It is the nation-wide organization for people with spina bifida and/or hydrocephalus, their families and friends.
It consists of 75 regional self-help groups and national associations in which parents, family members and concerned people volunteer, advice, share information and organise events. The ASBH currently represents approximately 4,000 members nationwide. The coordination of diverse activities is supported by the Federal office based in Dortmund.