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The World Spina Bifida and Hydrocephalus Day 2021

Description

The International Federation for Spina Bifida and Hydrocephalus (IF) is looking forward to celebrating together with YOU the World Spina Bifida and Hydrocephalus Day (WSBHD) on October 25, 2021.

This year IF selected the theme “Unlock Your Right To Health” to bring attention to the rights of persons with disabilities as laid out in the UN Convention on the Rights of Persons with Disabilities (UNCRPD). It is important that individuals with SBH and their families are aware of their human rights as per article 25 of the UNCRPD. It is equally important for healthcare providers, professionals and policy makers to understand their obligations to the UNCRPD. Therefore, IF would like to take the opportunity to raise awareness and reach worldwide actors who could unlock the rights of  individuals with Spina Bifida and Hydrocephalus on the World Spina Bifida and Hydrocephalus Day.

October Awareness Month

IF welcomes October 2021 as an awareness month during which various events and activities will take place around the World Spina Bifida and Hydrocephalus Day to which you are invited to take part. 

Among other actions, IF developed and launched a social media toolkit which provides you with key information about the WSBHD including key messages, links, hashtags, infographics to download and share on your social media for an active campaign on this memorable day.  

Main-event invitation and registration

IF invites you to attend the World Spina Bifida and Hydrocephalus Day’s main event on October 25 2021 from 3 PM to 4.30 PM (CEST) on the theme of “Unlock Your Right To Health”. This event will be divided into different chapters focusing on multiple aspects of unlocking the rights of individuals with SBH, such as the promotion and protection of the UNCRPD, multidisciplinary care, prevention, inclusion, need for networking, opportunity of twinning and community building.   

Register to the WSBHD main event now!

Monday 25th October ¦ 3 pm – 4.30pm CEST:

Main event agenda  (click on the picture to see it in full format)

WSBHD21 Main Event Agenda

Side-events agenda

This year, IF and Member Associations are organising side-events to the WSBHD’s main event. These events target individuals with SBH, both youth and older persons, and any other stakeholders interested in SBH and in sharing experiences and seizing opportunities to meet one another.

You can find the agenda and more information on the side-events below, but also on the official WSBHD website here.

Please note that both website pages will be updated with registration links and further details in the upcoming weeks. For the most updated information, please check out the WSBHD’s official website. To be notified of the latest updates, we invite you to follow IF on social media.

If you have further questions, don’t hesitate to contact IF at info@ifglobal.org

October 

awareness month (Day/Time CEST)

Title of the side event Organiser Additional information
15 Oct.

11PM

(EN) Let’s talk about Rights to Health

(SP) Hablemos sobre los derechos de la salud

FundaciĂłn MĂłnica Uribe Por Amor Online event

Open to All

Language: Spanish

19 Oct.

4PM –

5.30PM

From Traditional to Digital – Unlock Your Communication IF Communication All Communication Coordinators of IF Member Associations

Registration here

More information here

Online event

Language: English, Spanish

21 Oct.

9.30AM

(EN) Spina Bifida: Against a still too heavy health burden, prevention yet remains timid! 

(FR) Spina Bifida : Face à un fardeau sanitaire encore lourd, la prévention reste encore timide !

ASBH French Members

Hybrid event 

(online/in-person)

Language: French

22 Oct.

3PM – 4PM

The South Asian Network SBH South Asian Network South Asian Network

Online event

Language: English

23 Oct.

10 AM –

4 PM

Independence life with SBH start today Slovak Association of Spina Bifida and/ or Hydrocephalus Language: Slovak
23 Oct. Tea Time Get Together with SBH Mothers from South Africa ASBAH-SA Members from South Africa

In-person event

24 Oct. Awareness and Fundraising Musical Concert and the Launch of “The Spina Bifida Child” Book SBF-India All IF Members

Online event

Language: Hindu

25 Oct.

3PM – 4.30PM

MAIN EVENT WSBHD21

Unlock Your Right To Health

IF Open to ALL

Online

Agenda 

Registration here

Language: English 

25 Oct. APEBI Opening of a New House APEBI tbc
25 Oct. Spina Bifida and Hydrocephalus on TV – Unlock Your Right to Health  CU-SBH-NET tbc
25 Oct. National Prevention Campaign 2021/2022: the importance of folic acid intake, nutrition and a healthy lifestyle ASBI  All IF Members 

Online event

Language: Italian

26-27 Oct.

12PM – 2.30PM

A national discussion on Spina Bifida & Hydrocephalus – Bridging the Gaps between Patients/families and Health

Care Providers/Professionals towards improving Treatment Outcomes among

patients with SBH

FFF-SBHAN Members from Nigeria

Online event

Language: English

27 Oct.

3PM – 4.30PM

Ageing well with Spina Bifida and Hydrocephalus IF Working Group on Ageing with SBH All ageing SBH community

Registration here

More information here

Online event

Language: English

29 Oct.

2PM – 3 PM

Digital Escape Room – Unlock Your Rights  IF International Youth Group SBH All youth with SBH

Online event

Registration here

More information here

Language: English