7 February 2018 // World Birth Defects Day will take place the 3rd of March 2018! Since its launch in 2015, more and more volunteer-based organisations have joined this day to increase the awareness on birth defects surveillance, prevention, care and research. Every year we aim to raise awareness on this global health concern and urge the public, governments, organisations, policymakers, researchers and health care providers to help us to do the same all over the world. It is key to work together towards a healthy future for all children!

LOGO square 00130 January 2018 // For the first time, IF will hold its annual international conference in South-East Asia, from Friday August 10 to Sunday August 12, 2018. Our member, the Spina Bifida Foundation India in association with IF and the World Health Organization South-East Region look forward to welcoming you at the IF 28th International Conference on Spina Bifida and Hydrocephalus in New Delhi, India.

Screen Shot 2018 01 30 at 15.15.1029 January 2018 // IF members know better than anyone else just what it takes to juggle the demands of a fast-paced working life with their care responsibilities. Recurrent medical appointments, accompanying the child to school and helping out with catheterisation, overcoming obstacles and prejudice… Once the child grows up, the parents and siblings often continue providing care, especially when barriers are commonplace and state-provided personal assistance – a rarity. The employers are not always accommodating, and family members (usually, mothers!) are forced to reduce their career ambitions, work part-time or quit working altogether.

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