SBHB 04 sm18 August 2017 // Dr. Paige Church, has published "A Personal Perspective on Disability" in the August 2017 issue of JAMA Pediatrics. Paige (45) is a Canadian developmental pediatrician who was born with Lipomyelomeningocele, a form of Spina Bifida. In her article, she discusses how she learned that disability is not well tolerated in medicine, where lists of possible medical problems are often linked to expected quality of life. She describes her own medical record which, as she points out, misses features that truly define her: "physician, wife, mother, sister, daughter, mentor and friend."

Participants Spina Bifida and Hydrocephalus meeting in Ecuador7 August 2017 // IF member APEBI from Argentina is dedicated to the project to build a Latin American and the Caribbean Network for Spina Bifida and Hydrocephalus. Last month, a delegation visited Ecuador, to help improve the quality of life of persons with Spina Bifida and Hydrocephalus (SB/H) and their families in this country. Health care professionals, parents and young persons with SB/H were invited and participated in the sessions organised at the Hospital León Becerra.

Stakeholder Group of Persons with Disabilities20 July 2017 // The High-Level Political Forum (HLPF) in New York has come to an end, and countries have reaffirmed their commitment to achieve the landmark 2030 Agenda for Sustainable Development. During the event, 44 countries presented their Voluntary National Reviews (VNRs) of progress at the national and sub-national levels. Representatives of the Stakeholder Group of Persons with Disabilities (SGPwD) were active to ensure that all VNRs had a reference to persons with disabilities.

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