Your chance to SHINE - volunteer today!

Every summer Spina Bifida Hydrocephalus Ireland (SBHI) organises SHINE, a residential summer independence training project full of activities, challenges and fun for teenagers and young adults with Spina Bifida and/or Hydrocephalus nationwide. SHINE gives them the opportunity to develop their independence, confidence and social skills in a safe, encouraging and fun environment. There are 5 separate SHINE weeks planned in July and August 2011 in Dublin and Co. Kildare. SBHI is looking for energetic and willing volunteers and staff to join the SHINE team. Opportunities are available in areas such as Education, Health, Sports, Arts and Social Care and many more. Experience is not essential, full training will be provided. The minimum age is 18 years. The association conducts a strict screening process on all potential applicants. Read more here.
Be a part of SHINE 2011 - a residential summer programme full of activities, challenges and fun


Project ELI: Every Life Inspires

Eli was born with Spina Bifida, a neural tube defect. His parents, Jesse and Jodie, allowed his birth to be videotaped for a documentary on raising a child with spina bifida. Unfortunately Eli died shortly after his birth, yet the McGinley family stayed involved in what became to be known as Project ELI, as did many other families who are raising a child with Spina Bifida. The goal of the video is to be a source of comfort to families who have just heard that they are expecting a baby with Spina Bifida. As the McGinley’s know, there are a lot of questions and anxiety that come with this prenatal diagnosis. They hope their story, as well as the stories of other Arkansans touched by Spina Bifida will provide strength, comfort and hope to expecting parents.
Katie is one of the children with Spina Bifida featured in Project ELI


Introducing minimally invasive Hydrocephalus surgery into high-tech Western medicine

IF medical consultant neurosurgeon Dr. Benjamin Warf, Associate Professor of Surgery, Harvard Medical School, is currently the director of the Neonatal and Congenital Anomaly Neurosurgery at the Children's Hospital Boston. He is frequently called upon to counsel expectant parents in the Advanced Fetal Care Center whose child has a prenatal diagnosis of a neural tube defect, Hydrocephalus, or other brain or spine anomaly. In 2000 Dr. Warf and his family moved to Uganda, where he performed thousands of neurosurgeries on children at CURE Children's Hospital, Mbale, while teaching many local doctors the latest neurosurgical techniques. Now doctors at the Children’s Hospital Boston are employing the combined procedure he developed in selected infants, allowing Hydrocephalus to be treated without a shunt.
In Uganda Dr. Benjamin Warf developed an innovative surgical technique to treat Hydrocephalus without a shunt


Font Resizer

Decrease font size Default font size Increase font size

IF Newsletter

if newsletter button

Events calendar


Annual Report 2017


IF Privacy Notice

IF privacy notice

IF Glossary

IF Glossary

Member of EURORDIS


Arabic ass boobs amd