Prevalence study Spina Bifida among children and adolescent in the US

The CDC National Center on Birth Defects and Developmental Disabilities in Atlanta initiated a first study to provide population-based estimates of the prevalence of Spina Bifida among children and adolescents in 10 diverse regions in the United States. The study also examined variations in prevalence of Spina Bifida among children, according to age group, race/ethnicity, and gender. The overall prevalence of Spina Bifida among children and adolescents 0 to 19 years of age was 3,1 cases per 10000, which represents about 24860 children and adolescents living with Spina Bifida in the United States in 2002. These estimates could be useful for determining the need for local and regional resources to address the long-term care needs of those born with Spina Bifida.
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Across all the racial or ethnic groups, spina bifida affected more girls than boys

We are not God

In July IF organized a panel discussion at the conference for Pan African Pediatric surgeons (PAPSA) in Dar es Salaam. IF President Pierre Mertens interviewed Eli Skattebu (Norway), Sam Wasike (Uganda) and Juliana Auma (Kenya) on their daily life experience and asked two surgeons, Dr. Karmakar (India) and Dr. Kashinga (Zambia), to react. Dr. Dan Poenaru (Kenya) reported on a quality of life study of children with Spina Bifida in Kenya. In a lively discussion several doctors stated: we are here to serve all kids. We are not God to decide who will live or not.
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IF President Pierre Mertens talks with Eli Skattebu from Norway about living with Spina Bifida

Surgery workshop on Spina Bifida and Hydrocephalus in Dar es Salaam

IF facilitated a training on the surgery of children with Spina Bifida and Hydrocephalus for Pan African Pediatric surgeons (PAPSA) prior their conference "Trauma and Disability" in Dar es Salaam, Tanzania. Neurosurgeons Prof. Albright (US) and Dr. Kashinga (Zambia) performed several successful back closures, shuntings and ETV/CPC procedures on Tanzanian children during a teaching workshop at MOI in Muhimbili National Hospital. The surgeons attending the workshop gained confidence in the treatment of Spina Bifida and Hydrocephalus in the African context.
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One of the children who were successfully operated on during the surgery workshop in Tanzania

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