IF member organisations kick-off folate advocacy campaign in Sao Paulo

APEBI president Elena Zappoli of Buenos Aires, Argentina, IF liaison officer for AEBH Rozangela Santos of Rio de Janeiro, Brazil, IF board member Dr. Erwin Calgua from Guatemala and IF Secretary General Lieven Bauwens participated in a Bayer Schering Pharma Latin-American workshop on folate advocacy. IF and Bayer Schering Pharma have been teaming up in the European Union for the last 1.5 years to help prevent Neural Tube Defects and are expanding the partnership to other regions in the world. The two-day kick-off event in Sao Paulo, Brazil, brought together BSP regional and global staff and IF representatives to develop a strategy and disseminate good practice.

Participants of the folate advocacy workshop in Sao Paulo, Brazil


New EU strategy to empower people with disabilities

The EU believes that people with disabilities are entitled to live with dignity, enjoy equal treatment with the rest of the population, live independently, and take a full and active role in society. To realise this the European Commission has adopted the European Disability Strategy 2010-2020. The strategy covers eight key areas: accessibility; participation; equality; employment; education and training; social protection; health; and external action. To move forward in these areas, the strategy has established a number of activities for its first five years. The Commission will consider drafting a European Disability Act in 2012. The aim here will be to improve accessibility of goods, services and public infrastructure through the development of accessibility standards, and by enhancing the use of public procurement to buy accessible goods and services.
Despite both EU and national legislation, many people with disabilities still face difficulties in their everyday lives


Your chance to SHINE - volunteer today!

Every summer Spina Bifida Hydrocephalus Ireland (SBHI) organises SHINE, a residential summer independence training project full of activities, challenges and fun for teenagers and young adults with Spina Bifida and/or Hydrocephalus nationwide. SHINE gives them the opportunity to develop their independence, confidence and social skills in a safe, encouraging and fun environment. There are 5 separate SHINE weeks planned in July and August 2011 in Dublin and Co. Kildare. SBHI is looking for energetic and willing volunteers and staff to join the SHINE team. Opportunities are available in areas such as Education, Health, Sports, Arts and Social Care and many more. Experience is not essential, full training will be provided. The minimum age is 18 years. The association conducts a strict screening process on all potential applicants. Read more here.
Be a part of SHINE 2011 - a residential summer programme full of activities, challenges and fun


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