European Patients’ Rights Day - calling for better Access to healthcare for persons with Spina Bifida and Hydrocephalus
18 April 2017 // On the European Patients’ Rights Day 2017, IF is calling attention to the problems persons with Spina Bifida and Hydrocephalus (SBH) still face with access to healthcare, and to the need to ensure their basic human rights. As access to healthcare is a key priority for IF and its members, IF strongly supports the European Patients’ Forum (EPF) campaign on “Universal Health Coverage For All”.
Today, on the World Health Day IF calls for more attention for mental health and wellbeing of people with SBH
7 April 2017 // The right to health for people with Spina Bifida and Hydrocephalus (SBH) has been at the heart of IF’s work since its establishment in 1979. Traditionally, IF has been focused on access to physical health, recognising the unique healthcare needs of persons with SBH. In the recent years, however, the need to pay attention to a more global view on health, including mental health of people living with these disabilities has become obvious and urgent. In 2017, IF is beginning a new chapter in its history by exploring the mental health and wellbeing of persons with SBH and their families. This reflection paper is the first building block in this process, aiming to kick off the debate and invite opinions.
6 April 2017 // Today the European Parliament Disability Intergroup discusses the progress on CRPD implementation at the EU level. In this connection, IF publishes its response to the Progress report of the European Disability Strategy (2010-2020). This position paper focuses on 3 main topics: