3- 5 October 2016 // The representatives of the International Federation for Spina Bifida and Hydrocephalus were present at the HRC Social Forum in Geneva. The theme of the 2016 session of the Social Forum was the promotion and full and equal enjoyment of all human rights and fundamental freedoms by all persons with disabilities in the context of the tenth anniversary of the adoption of the Convention on the Rights of Persons with Disabilities (CRPD).
26 September 2016 // IF is looking for national and regional Spina Bifida and/or Hydrocephalus associations from all over the world to expand its membership. By working together and through the exchange of knowledge and experiences, we can help each other to improve the quality of life of people with Spina Bifida and Hydrocephalus and their families, and we can reduce the prevalence of neural tube defects and hydrocephalus by primary prevention.
Does your organisation support the mission and goals of IF, is your organisation open to all people with Spina Bifida and/or Hydrocephalus and their families within its territory, is your organisation officially recognised in your country? Download the IF Membership Application Form and join the International Federation for Spina Bifida and Hydrocephalus (IF) now to become a stronger advocate for the rights of persons with SBH and their families!
19 September 2016 // IF will soon be starting its exciting new Global Prevention Initiative (GPI), which will be officially launched on October 28 by HRH Princess Astrid of Belgium at the IF Turning Points conference in Ghent. Join our Thunderclap campaign to help raise awareness for this important event!
The GPI is the first initiative of its kind, that aims to tackle the primary prevention of Neural Tube Defects and Hydrocephalus as a united global community. By joining forces and addressing the issue together, we can support sustainable action and awareness on a global level, to maximise the prevention of these disabilities. We will help to support all IF members, and WHO member states in developing regional and national plans for the implementation of effective interventions to prevent birth defects, including the development and delivery of effective prevention initiatives and food fortification strategies, in line with the aims of the WHO.