Mrs. Sun Shujun, former member of the Chinese parliament, wishes to join the IF networkIn Beijing all stakeholders in care attended the first network meeting for treatment and care of Spina Bifida and Hydrocephalus in China. The incidence of Spina Bifida and Hydrocephalus in China is high, as is childhood mortality due to these conditions. The event was a joined initiative of China Disabled Persons' Federation (CDPF), China Rehabilitation Research Center (CRRC) and IF. It was an inspiring meeting where the interventions created for IF's projects in developing countries made a real impression.

Driving Force, a large group of survivors, is determined to fight for access to decent care for all persons with SB&H in China. Their leader Mr Sun Hongwei emphasized the urgent need for better care and treatment.

Danny Lamb and Jay Baty tour Europe in support of Spina Bifida and HydrocephalusCanadian born musicians Danny Lamb and Jay Baty are excited to announce that they will be spending the month of June writing songs and traveling through Europe to raise awareness of Spina Bifida and Hydrocephalus. Danny was diagnosed with both conditions at age 3, and plays an invaluable role as the Youth Ambassador for the Spina Bifida and Hydrocephalus Association of Ontario (SB&H). He travelled with IF to Uganda and Stockholm, to inspire and connect with youth with SB/H through his music. Now Danny and Jay will reach out to people with SB/H and their families in Ireland, England, Scotland, the Netherlands, Belgium and Turkey. They will write a song in each city they visit, which they will share through various social media.

 

WHO training on surveillance and prevention of birth defectsIF's President and Secretary General will represent IF at the Training Program on Surveillance and Prevention of Birth Defects and Preterm Birth. The event is organized by the International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), US Centers for Disease Control and Prevention (CDC) and the World Health Organization (WHO).

The primary goal of the course is to help countries promote primary prevention and the health of children with birth defects by developing and strengthening surveillance activities, developing expertise, building technical capacity, and promoting international cooperation.

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