After several years of lobbying, the Spina Bifida Federal Association, the Sudanese parent association, has successfully agreed with the Soba Teaching Hospital in Khartoum to establish the “Professor Ibrahim Abdul Aziz Center for Children with Spina Bifida”. This center will be the first of its kind in the country and will greatly improve the treatment of children with SB. The Spina Bifida Federal Association is an IF member since 2010. With no established medical and lifelong care available in Sudan, the SBFA has been the only source of coordinated support to the children and their families in Khartoum region.
5th session of the Conference of States Parties to the Convention on the Rights of Persons with Disabilities
The Fifth Session of the Conference of States Parties to the Convention on the Rights of Persons with Disabilities will take place from 12 to 14 September 2012 at the UN Headquarters.The theme of the fifth session is: “Making the CRPD count for Women and Children”. The following are the sub-themes of the conference: “Technology and Accessibility”, “Children with Disabilities” and “Women with Disabilities”. The Spina Bifida and Hydrocephalus community will be represented by IF on the person of Mr. Lieven Bauwens, IF secretary general.
UNICEF and the World Health Organization (WHO) are holding a launch event of their new discussion paper entitled 'Early childhood development and disability' during the Conference of State Parties to the CRPD. The paper aims to stimulate discussion, planning and action on issues related to disability, early childhood development and early childhood intervention. This interactive event will provide the first opportunity for diverse stakeholders - advocates, policy makers, and early intervention specialists - to discuss the content of the document, priorities for action and the next steps.