For World Folic Acid Awareness Week, which takes place this year from January 9th -15th, we invite you to explore the new pages on the IF website that are part of our Global Prevention Initiative (GPI). Most of you will know that Folic Acid is key to reducing the risk of most neural tube defects (NTDs), but do you know when to start taking it? Do you know the difference between Folic Acid and folate, and why both supplementation and fortification are essential? Don't forget to check out the facts and misconception on our Folic Acid page, and to learn more about high risk women. For instance, did you know that diabetes and obesity can increase the risk in pregnancy that a baby will develop an NTD?
From 2017, every January the International Federation for Spina Bifida and Hydrocephalus will work with its member organisations, partners and supporters to promote World Folic Acid Awareness Week as part of the IF Global Prevention Initiative (GPI) to reduce the worldwide risk of NTDs and Hydrocephalus. We are asking for your support once again, by joining our united effort to raise awareness of this import global public health issue. From January 9th -15th we will mark the very first World Folic Acid Awareness Week.
On 15 December 2016, the European Commission announced the first 23 European Reference Networks (ERNs) for Rare Diseases. This momentous step comes after years of collaboration and efforts between rare disease patients, clinical experts and policy makers in EU Member States, at the European Commission and the European Parliament, to bring the ERNs to fruition. ITHACA, the European Reference Network on Rare Congenital Malformations and Rare Intellectual Disability is among the approved ERNs. The next round of approvals, for the second wave of the 2016 call for interest to become a ERN, should follow in February.