Brussels 10 August 2016 // The Turning Points conference is organised by the International Federation for Spina Bifida and Hydrocephalus (IF), in close cooperation with the Flemish Association for Spina Bifida and Hydrocephalus (VSH), Ghent University, and the Spina Bifida team of Ghent University Hospital.
Her Royal Highness Princess Astrid of Belgium confirmed her participation at the first day of the conference to present the annual IF Award and mark the launch of IF’s Global Prevention Initiative that aims to raise awareness for actions to improve the primary prevention of Spina Bifida and Hydrocephalus through worldwide cooperation.
Brussels 29 July 2016 // To assist its members in their advocacy work, IF has published its "Statement on Multidisciplinary Care for the treatment of children and adults born with Spina Bifida and Hydrocephalus". It is essential that all specialists and services cooperate and coordinate to make sure that children and adults with SBH achieve the highest attainable standard of health. In addition, receiving multidisciplinary care will reduce the need for multiple appointments, often at different locations. Services need to be age-appropriate and should include measures to ensure a proper transition from paediatric to adult multidisciplinary care for SBH.
Brussels 15 July 2016 // The Netherlands ratified the Convention on 13 July 2016, bringing the total number of States Parties to the CRPD to 166 and total ratification of the Optional Protocol to 89.