28 October 2016 // Today marks the launch of an exciting new worldwide initiative from the International Federation for Spina Bifida and Hydrocephalus (IF), the first of its kind to tackle the primary prevention of Neural Tube Defects (NTDs) and Hydrocephalus as a united global community.
NTDs affect around 500,000 live births every year. Spina bifida, the most common NTD, is the most severe birth defect compatible with life, and anencephaly is almost always fatal. Yet the majority of these birth defects is easy to prevent! In 1991, a landmark study by the Medical Research Council discovered that folic acid (vitamin B9) could reduce the risk of NTDs significantly, by up to 72%. However 25 years on, we are still only managing to prevent around 15% of the cases that we could!
25 October 2016 // Today is the 5th World Spina Bifida and Hydrocephalus Day! The aim of the World Spina Bifida and Hydrocephalus Day is to raise awareness and understanding and to advocate and promote the rights of persons with these conditions. Here is the WSBHD toolkit on how to become part of it. IF’s members have been celebrating it since 2012. Have a look at this year’s activities worldwide.
21 October 2016 // In exactly a week from today we will all meet in the beautiful city of Ghent to look back in history to the great Turning Points which have secured, prolonged and improved life for people with spina bifida and hydrocephalus, and forwards to the Turning Points we have yet to achieve...