MG 3457 sm1 February 2017 // As February is International Prenatal Infection Prevention Month, we are adding our support by providing advice and information on reducing the risk of infections that we know increase the risk of babies developing hydrocephalus, and also premature birth, subsequently increasing the risk of hydrocephalus as a result of Intraventricular Haemorrhage (IVH).

logo access campaign 2017 web1 February 2017 // In the framework of their campaign to promote Universal Health Coverage, the European Patients Forum advocates for the removal of financial barriers to healthcare, improvement of access, and reduction of waiting times for European patients. This initiative does not only support access to medicines and treatment, but also aims to overcome structural barriers to the healthcare system and encourage cooperation between EU countries to achieve the proposed goals.

dublin news31 January 2017 // A unique disability rights advocacy training for young people with SB/H was held by IF last November in Dublin.

The IF pilot training aimed to empower young people with disabilities through understanding the UN Convention on the Rights of Persons with Disabilities (UN CRPD) and developing competences for effective disability rights advocacy and inclusive participation. The intense 3-day programme was based on interactive methodologies, game-based approach, simulations, role exercises, experts’ inputs and discussions. It was tailored to the participants’ needs and access requirements, which allowed every young person to feel fully included. The participants were young members of Spina Bifida and Hydrocephalus Ireland committed to using the skills received at the training in their local activism work.

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