OPENPediatrics flyer22 March 2017 // To improve the medical care of children worldwide, an open-access online educational platform has been designed by experienced physicians at Boston Children's Hospital, called OPENPediatrics. The platform offers virtual training, tools for sharing knowledge and communicating with other health professionals, and a library of resources including videos, lectures, device simulators, and protocols. World-class medical expertise is now available to all paediatric health professionals, anywhere, at any time. OPENPediatrics is currently being used in 2,470 hospitals and 145 countries worldwide. By joining the platform, paediatric clinicians around the world can connect with each other, learn from each other and cooperate.

image220 March 2017 // For Brain Awareness Week, which took place from March 13th – 19th, IF added its support by providing information on preventing and reducing the risks of developing Hydrocephalus. It is a disability which, if treated properly, isn't always visible. It is also a condition which is surrounded by stigma and misinformation. Parents may be told that their child is brain damaged and will be "a vegetable". Yet with proper treatment, many people with Hydrocephalus will be able to live their lives equal to others. Their brain may be working differently, they may experience specific cognitive issues, but with the right support a solution can be found.

ERN39 March 2017 // The 3rd conference on European Reference Networks (ERN) kicked off in Vilnius, Lithuania. The event focused on the presentation of the 24 newly approved ERNs and brought together a wide range of stakeholders, including patient representatives. ERNs were praised as the future of European cooperation in the area of healthcare in this difficult time for the EU. All participants agreed that ERNs need to be inclusive and patient centred to provide the best possible outcomes. Presentations by selected patients representatives showed that patients were involved every step of the way during the development of their specific ERNs. Nevertheless, it was stressed by the speakers that this is just the beginning and many challenges still lay ahead.

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