IF45F4 April 2018 // UNICEF launched a new report and campaign, “Every Child ALIVE”, which focuses on newborn deaths and the urgent need to prevent this from happening. Every day, 7,000 newborn babies are dying. IF responded by showing its support to the initiative, but also by expressing its concern about the lack of focus on the extremely vulnerable group of newborns with birth defects and disabilities and the discrimination they face in access to healthcare.

B9160050A2250C22E1A81EFFBF5C7722D7FA213E9DD5EF90F5pimgpsh fullsize distr3 April 2018 // The Special Rapporteur on the rights of persons with disabilities Catalina Devandas-Aguilar is preparing a study on “the right of persons with disabilities to the highest attainable standard of health”. She welcomed inputs from everyone with an interest to assess the realisation of this right around the world. IF has submitted a response to highlight the most important challenges that people with spina bifida and hydrocephalus encounter in the various healthcare systems and throughout their lives, and which steps need to be taken to ensure their right to health.

IMG 754323 March 2018 // Last weekend, 16-18 March 2018, IF joined its Italian member ASBI for the kick-off meeting of the joint Erasmus project  SkiXAll, which took place in Madesimo, Italy.

The partners of the project: ASBI, the association Freerider Sports Events, the Federation of Italian Paratetraplegic Associations, Handy Club Ostrava (Czech Republic), Active Therapy (Poland), and IF, gathered on Saturday afternoon to get a deeper knowledge on how the project was organised and to discuss the next steps.

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