NOMOREBS Iris 60023 August 2017 // One of our US members, the Hydrocephalus Association, is raising awareness on the profound effect that shunt treatment can have on the lives of persons with Hydrocephalus. Important milestones can be affected when a shunt fails, and people's lives can be at risk if shunt failure is not recognised or detected in time. Throughout a person's life, a shunt can fail multiple times. Brain surgery shouldn't be the only treatment for Hydrocephalus. The Hydrocephalus Association invites you to join their #NOMOREBS movement and to share, and respond to, their posts on Facebook and Twitter.

SBHB 04 sm18 August 2017 // Dr. Paige Church, has published "A Personal Perspective on Disability" in the August 2017 issue of JAMA Pediatrics. Paige (45) is a Canadian developmental pediatrician who was born with Lipomyelomeningocele, a form of Spina Bifida. In her article, she discusses how she learned that disability is not well tolerated in medicine, where lists of possible medical problems are often linked to expected quality of life. She describes her own medical record which, as she points out, misses features that truly define her: "physician, wife, mother, sister, daughter, mentor and friend."

Participants Spina Bifida and Hydrocephalus meeting in Ecuador7 August 2017 // IF member APEBI from Argentina is dedicated to the project to build a Latin American and the Caribbean Network for Spina Bifida and Hydrocephalus. Last month, a delegation visited Ecuador, to help improve the quality of life of persons with Spina Bifida and Hydrocephalus (SB/H) and their families in this country. Health care professionals, parents and young persons with SB/H were invited and participated in the sessions organised at the Hospital León Becerra.

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