The IF Award for the year 2004 has been presented to the Ryggmargsbrokk- og Hydrocephalusforeningen by unanimous decision of the international Board. Ryggmargsbrokk- og Hydrocephalusforeningen is the Norwegian association for Spina Bifida and Hydrocephalus.
The Norwegian association has achieved wonderful results in their own country including playing a leading role in establishing the centre TRS. From the beginning, the excellent work carried out in Norway has been shared with the international community, by playing an important role in our federation. Otto and Moyna Berg and more recently Runa Schoyen have been active members of the IF board.
On the establishment of the IF projects in developing countries the Ryggmargsbrokk- og Hydrocephalusforeningen showed their solidarity immediately, not only with fundraising campaigns, but also the lobbying of their government, Norad, and Atlas Alliance resulted in the financial input IF needed to succeed in this new challenge. The Norwegian association was closely involved in the entire process and motivated African parent groups to grow and fight together for their children. The whole association supported African solidarity and many of their members are involved in training and exchange projects in East Africa.
To our knowledge, Ryggmargsbrokk- og Hydrocephalusforeningen was the first member country to elect an adult with spina bifida to lead their association - another progressive act which has been an example for others world wide.
With this award IF expresses its great appreciation for the work done by Ryggmargsbrokk- og Hydrocephalusforeningen in improving the lives of many children and adults with Hydrocephalus and Spina Bifida in Norway, in Africa and worldwide, and wishes them well in the next phase of their valuable work, as they move into their new official office.