A global IFSBH initiative to better understand inequalities in access to healthcare and strengthen equitable care for people living with SBH worldwide.
25 October 2026
Discover this year’s theme, campaign, challenge and how you can get involved.
Come together with the global SBH community for three days of learning, exchange, connection and celebration and join us at the 31st International Conference on Spina Bifida and Hydrocephalus, taking place in Montréal, 15–17 October 2026.
The SBH Health Equity Project is a global initiative developed with IFSBH members to better understand barriers in accessing healthcare for people with spina bifida and hydrocephalus. Grounded in lived experience, the project aims to identify shared priorities, highlight regional differences, and strengthen advocacy for more equitable health systems worldwide.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Tackling the primary prevention of neural tube defects (NTDs) and hydrocephalus as a united global community.
Fighting for access to affordable multidisciplinary healthcare for people with Spina Bifida and Hydrocephalus and their families.
Fostering inclusion, respect, and stronger rights for persons with Spina Bifida and Hydrocephalus through awareness-raising.
Established in 2011 to celebrate achievements and accelerate global action for Spina Bifida and Hydrocephalus.
Protecting human rights and promoting living with dignity, access to essential services, and full participation in society.
Building bridges and empowering national Spina Bifida and Hydrocephalus associations to advocate for our rights.
IFSBH’s fast-growing membership now includes over 100 Spina Bifida and Hydrocephalus (SBH) associations in Africa, Australia, the Americas, Asia and Europe. Membership of IFSBH is open to all nationally registered SBH associations that share IFSBH’s vision and mission and actively involve people with SBH in their work. Organisations, institutions, companies and individuals with an interest in SBH and the aim to widen the extent of their activities are also welcome to apply for IFSBH membership. Check out our Membership Guide to learn more!
Please note that this map also displays SBH associations that are not a member of IFSBH. They are represented by a red dot. If you know of an SBH association not represented below, please email us at [email protected].
