Surgery workshop on Spina Bifida and Hydrocephalus in Dar es Salaam

IF facilitated a training on the surgery of children with Spina Bifida and Hydrocephalus for Pan African Pediatric surgeons (PAPSA) prior their conference "Trauma and Disability in Dar es Salaam, Tanzania. Neurosurgeons Prof. Albright (US) and Dr. Kashinga (Zambia) performed several successful back closures, shuntings and ETV/CPC procedures on Tanzanian children during a teaching workshop at MOI in Muhimbili National Hospital. The surgeons attending the workshop gained confidence in the treatment of Spina Bifida and Hydrocephalus in the African context.

One of the children who were successfully operated on during the surgery workshop in Tanzania

IF's international solidarity now known under the name IF Child Help

During the board meeting in Dublin IF decided to name its work in developing countries IF Child Help. In Belgium and Uganda NGOs are already registered under the name IF Child Help Belgium. It is hoped that many countries will follow. During IF's annual African Workshop in Dar es Salaam, Tanzania, parent groups from various East African countries and India were trained to become real NGOs to advocate for our children, adults and families. Sudan took the lead and became a full member of IF during IF's General Meeting in Dublin. IF invited the Indian Spina Bifida and Hydrocephalus foundation and the Mumbai parent group at the workshop in Dar Es Salaam, because IF Child Help hopes to become more active in India as well.

Ali Almubarak, president of the Sudan association for Spina Bifida, and his family

We are not God

In July IF organized a panel discussion at the conference for Pan African Pediatric surgeons (PAPSA) in Dar es Salaam. IF President Pierre Mertens interviewed Eli Skattebu (Norway), Sam Wasike (Uganda) and Juliana Auma (Kenya) on their daily life experience and asked two surgeons, Dr. Karmakar (India) and Dr. Kashinga (Zambia), to react. Dr. Dan Poenaru (Kenya) reported on a quality of life study of children with Spina Bifida in Kenya. In a lively discussion several doctors stated: we are here to serve all kids. We are not God to decide who will live or not.

IF President Pierre Mertens talks with Eli Skattebu from Norway about living with Spina Bifida

European Commission highlights the need for Folic Acid supplementation

In response to the parliamentary question posed by MEPs Dr. Antonyia Parvanova, Edite Estrela and Ria Oomen-Ruijten, EU Health Commissioner John Dalli answers that the Commission shares their concern for the need for adequate levels of Folic Acid intake by woman of childbearing age before conception and during early pregnancy. Through the Commission's Communication on Rare Diseases, Member States are encouraged to take primary preventive actions, such as promoting Folic Acid supplementation, when possible. However, it is up to the Member States to decide whether or not they wish to introduce alternative or complementary measures such as voluntary food fortification with Folic Acid. IF and its members will continue to work on the EU and national level to keep primary prevention a top priority. Read the full answer.

EU Commissioner for Health and Consumer Policy John Dalli

Spain first country to submit its initial report to the CRPD Committee

All States parties that have ratified the UN Convention on the Rights of Persons with Disabilities (CRPD) are obliged to submit regular reports to the CRPD Committee on how the rights are being implemented. States must report initially within two years of accepting the Convention and thereafter every four years. The Committee examines each report and can make suggestions and general recommendations on the report and shall forward these to the State Party concerned. The Optional Protocol to the Convention gives the Committee competence to examine individual complaints with regard to alleged violations of the Convention by States parties to the Protocol. Spain was the first country this year to submit its initial report to the Committee and was recently followed by Tunesia and Peru. The reports will be discussed in the next Committee meeting, October 4-8, 2010 in Geneva. The Committee has issued reporting guidelines to advise States Parties on the form and content of their reports.

The 4th session of the Committee of the Rights of Persons with Disabilities will be held in the Palais des Nations in Geneva, Switzerland

Aanstelling Speciale Adviseur Internationale Rechten voor Mensen met een Handicap

Het Bureau van Democratie, Mensenrechten, en Arbeid kondigt de aanstelling aan van Judith Heumann als de Speciale Adviseur voor Internationale Rechten voor Mensen met een Handicap. Deze functie werd verleden jaar zomer geïntroduceerd, toen President Obama en Minister Clinton verklaarden dat de Verenigde Staten het Verdrag inzake de Rechten van Personen met een Handicap zou ondertekenen. Speciale Adviseur Heumann zal o.a. de inspanningen van de regering van de VS leiden om een uitgebreide strategie te ontwikkelen om de rechten van personen met een handicap internationaal te promoten en een interdepartementaal proces coordineren voor de ratificatie van het Verdrag inzake de Rechten van Personen met een Handicap. In maart 2010 kondigde de nonprofit organisatie Courage Center aan dat zij de 2010 Medtronic National Courage Award aan Heumann zullen toekennen in september. Heumann werd ontvangt de 2010 award als erkenning voor haar levenslange inzet voor kinderen en volwassen met een beperking.

Judith Heumann kreeg polio toen zij 18 maanden oud was en werd de eerste persoon in een rolstoel die les gaf in een openbare school in de stad New York

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