IF related websites

Spina Bifida and Hydrocephalus associations

Spina Bifida and Hydrocephalus related links

Chat, support and discussion groups

Disability - General

IF related websites

IF's 21th International Conference
Information about IF 21th Conference "What's the next step?"

IF Knowledge Network
Find and submit information about Spina Bifida and/or Hydrocephalus

IF Conference weblog
Information about IF's 19th Conference "Drawing Smiles - Towards Adulthood" in Lisbon, Portugal, and SBAA's 35th conference

Spina Bifida and Hydrocephalus associations

Argentina
Asociación Para la Espina Bífida e Hidrocefalia (APEBI)
http://www.apebi.org.ar

Algeria
Association des malades de spina bifida de Mostagenem
http://www.spinabifida27.unblog.fr

Australia
Spina Bifida Foundation of Victoria
http://www.sbfv.org.au/

The Northcott society in Australia
http://www.northcott.org.au

The Spina Bifida and Hydrocephalus Assocation of South Australia
http://www.spinabifida.asn.au

SBH Queensland 
http://www.spinabifida.org

The Spina Bifida Association of Western Australia
http://www.sbawa.asn.au

Austria 
Spina Bifida und Hydrocephalus Österreich (SB&HÖ)
http://www.sbho.at/

Belgium 
Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH)
http://www.spinabifida.be

Association Spina Bifida Belge Francophone (ASBBF)
http://www.asbbf.be 
http://www.vitamineb9.be

Brazil
Associação de Espinha Bífida e Hidrocefalia do Rio de Janiero (AEBH)
http://www.aebh.org/

Canada
Spina Bifida and Hydrocephalus Association of Canada (SBHAC)
http://www.sbhac.ca/

Spina Bifida and Hydrocephalus Association of Quebec 
http://www.spina.qc.ca/en/index_en.htm

Association de spina-bifida et d'hydrocéphalie de la région de Montréal

Spina Bifida and Hydrocephalus Association of British Columbia (SBHABC)
http://www.sbhabc.org/

Spina Bifida and Hydrocephalus Association of Nova Scotia (SBHANS)

Spina Bifida and Hydrocephalus Association of Ontario (SBHAO)
http://www.sbhao.on.ca/

Spina Bifida and Hydrocephalus Association of Southern Alberta (SBHASA)
http://www.sbhasa.ca/

Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA)
http://www.sbhana.org/

Denmark
Rygmarvsbrokforeningen af 1988
http://www.rygmarvsbrokforeningen.dk

Finland
Suomen CP-liitto ry 
http://www.cp-liitto.fi

MeHyvät association/ Verevä-projekti
http://personal.inet.fi/yhdistys/mehyvat/

France
Fédération Française des Associations du Spina Bifida (FFASB)
http://www.spinabifida.fr

Germany
Arbeitsgemeinschaft Spina Bifida und Hydrocephalus (ASBH)
http://www.asbh.de

Guatemala
Asociación Guatemalteca de Espina Bífida
http://ebguatemala.blogia.com/

India
Indian Spina Bifida Association (ISBA)
http://indiaspinabifidaassociation.org 

Indonesia
Komunitas Spina Bifida Indonesia

Ireland
Irish Association for Spina Bifida and Hydrocephalus (IASBAH) 
http://www.sbhi.ie/

Italy
Spina Bifida Italia
http://www.spinabifidaitalia.it/

Associazione Spina Bifida Italia (ASBI) 
http://www.asbi.info/

Japan
Spina Bifida Association of Japan
http://www006.upp.so-net.ne.jp/sbaj/

Jersey
The Jersey Association for Spina Bifida & Hydrocephalus (JASBAH)
http://www.jasbah.org

Luxembourg
Association pour le Spina Bifida a.s.b.l. 
http://www.spina-bifida.lu/

the Netherlands
BOSK Work Group Spina Bifida & Hydrocephalus
http://www.bosk.nl

Norway
Ryggmargsbrokk- og hydrocephalusforeningen
http://www.ryggmargsbrokk.org

Poland 
Stowarzyszenie Chorych z Przepukliną Oponowo-Rdezeniową R.P. (ASBP)
http://spinabifida.w.interia.pl

Portugal
Associação Spina Bifida e Hidrocefalia de Portugal (ASBIHP)
http://asbihp.blogspot.com/

Puerto Rico
Asociación de Espina Bífida e Hidrocefalia de Puerto Rico, Inc.
http://www.espinabifidapr.com/

Saudi Arabia
Saudi Spina Bifida Support Group
http://www.alsolb.com

Scotland 
Scottish Spina Bifida Association (SSBA) 
http://www.ssba.org.uk

Slovakia
Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus, o.z.
http://www.sbah.sk

Spain
Federación Española de Asociaciones de Espina Bífida e Hidrocefalia (FEBHI)
http://www.febhi.org

Asociacion de Padres con Hijos Espina Bifida (APHEB)

Federació D’Espina Bífida I Hidrocefàlia Comunitat Valenciana 
http://www.espinabifida-fundacion.org/febhcv.html

Federación de Asociaciones de Espina Bífida de Andalucía
http://www.faeba.es/guia

Sweden
RBU
http://www.rbu.se

Switzerland 
Schweizerische Vereinigung Spina Bifida und Hydrocephalus (SBH)
www.spina-hydro.ch

Turkey
Spina Bifida Derneği
http://www.spinabifida.org.tr/

United Kingdom
Association for Spina Bifida and Hydrocephalus (ASBAH)
http://www.asbah.org/

USA
Spina Bifida Association of America (SBAA)
http://www.sbaa.org/

Hydrocephalus Association
http://www.hydroassoc.org/

Colorado Spina Bifida Association
http://www.coloradospinabifida.org

Venezuela
Asociación Venezolana de la Espina Bífida

The Children and Adults with Spina Bifida website - the focus of this site is myelomeningocele, the most severe form of spina bifida

Spina Bifida Research Bibliography

Greet Mommen - medical illustrations: "Scientific illustrations on Spina Bifida"

Right under my nose - A story for children with Spina Bifida (© 2006 Childrens Hospital Los Angeles)

Estonian Chamber of Disabled People - www.epikoda.ee

Support group for people with spina bifida - alt.support.spina-bifida  

Hydrocephalus Association - aims to contribute emotional support to people with hydrocephalus and their family.

Holdin' out for a hero - Laura Tellado's search for a spokesperson for people with Spina Bifida

Spina Bifida Kids - A Spina Bifida resource for parents of children with Spina Bifida

http://www.cocemfe.es - Confederación Coordinadora Estatal de Minusválidos Físicos de España

http://www.caritas.es - Cáritas Española

http://www.cepes.es - La Confederación Empresarial Española de Economía Social (CEPES)

http://www.spinabifidaitalia.it - Italian website dedicated to spina bifida

Chat, support and discussion groups

Scandinavian hydrocephalus chat group -http://uk.groups.yahoo.com/group/hydrochat

US based support group for parents raising children with spina bifida -  www.spinabifidasupport.com

Brazilian Spina Bifida and Hydrocephalus discussion group - http://br.groups.yahoo.com/group/listadaespinhabifida/

Disability - General

European Disability Forum - http://www.edf-feph.org

PACER Center - Champions for children with disabilities

RADAR - Royal Association for Disability and Rehabilitation

HealthWrights is a non-profit organization committed to advancing the health, basic rights, social equality, and self-determination of disadvantaged persons and groups

The Politics of Health Knowledge Network is a forum for the exploration of the impact of political decisions on health.

Disability Now - UK's most comprehensive archive of disability information

Disability Net

http://www.edfwomen.org.uk - UK Disability Forum for European Affairs (UKDFfEA) Women's Committee

http://www.women.gov.au - Australian Government services for women (with link to women and disability)

http://www.disabilityworld.org - international magazine of disability news and views, published in English and Spanish (only on the web)

http://www.un.org/esa/socdev/enable/ - the UN – persons with disabilities homepage

http://www.un.org/esa/socdev/enable/dis50y00.htm - Persons with Disabilities: Fifty Years of Progress

http://www.kennedykrieger.org - The Kennedy Krieger Institute

Empowering Jews with Disabilities - a website started by Marlee Kivens who has Spina Bifida and wants to connect with others with a disability worldwide

Toys for children with disabilities - lots of toys for you to make

http://www.disabledunited.com - included on the site is a unique Friends and Dating facility, chat room and message forums

Reachout Magazine - meeting place for people with disabilities (includes a live chat area) 

http://www.lookingglass.org - a community non-profit organisation which emerged from the disability independent movement

Baxley Media Group - videos on disabilities and special education, also a range of videos concerning health and human relations

Self Help and Support Groups - guide to groups in the UK and overseas

Accessible Vacation Home Exchange - free service by the Institute on Independent Living

Information on health and social services - for the residents of the London Borough of Wandsworth

Institute on Independent Living - homepage

http://www.surgerydoor.co.uk - UK Health Portal

http://www.hemihelp.org.uk - provides information to children with hemiplegia and their families

http://www.disabledinfo.com - provides information for disabled people, their families and carers, who are looking for help, advice or shopping requirements

Open Society Mental Health Initiative - In addition to highlighting best practices in community-based care, the site includes a comprehensive Resource Directory that provides information on a variety of topics related to mental health, intellectual disability and human rights.

Skill - National Bureau for Students with Disabilities: promotes equality of opportunity for disabled people in post 16 education, training and employment

A resource site - Special Educational Needs Information: website for teachers of children with special educational needs

Ability - lots of links

DisabilityWorld  - a lot of information about disability sites

Inclusion International - a global federation of family-based organizations advocating for the human rights of people with intellectual disabilities worldwide

Healthlink worldwide 

www.handicheck.net - Dutch website with a variety of articles and news items on special computer aids for amongst others people with a mobility disorder