IF publications - IF Spina Bifida Hydrocephalus /Hydrocefalie

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Supported by the European Commission - Directorate-General Employment, Social Affairs and Equal Opportunities - Unit G3. Integration of People with a Disability - via the Progress programme

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IF publications

Providing correct information to parents and professionals is essential for good care of the child.

IF produced a series of leaflets to be used in developing countries in cooperation with several advisors.

An overview of available leaflets:

- Hydrocephalus leaflet for parents (available in English, Spanish, Swahili, French, Bahasa Indonesian and Portuguese)

- Spina Bifida leaflet for parents (English, Bahasa Indonesia)

- Shunting and Hydrocephalus: information for professionals and projects

Guidelines for the Management of Hydrocephalus and Spina Bifida (E)
Guidelines Hydrocephalus (E)
Strategy for Treatment of Hydrocephalus in Developing Countries (E, F, Sp)
IF statement use Chhabra shunt (E, F, Sp)
Protocol for Testing Shunt Valves (E, F, Sp)
List Basic Shunting Set (E)
Comparison of 1 year outcome for the Chhabra and Codman Hakin precision shunt systems in Uganda: a prospective study in 195 children - Dr B. Warf (E)
What has the Hydrocephalus work in Africa taught us? From etiology to treatment - Dr B. Warf (E)

- Prevention of Hydrocephalus (presentations)

Prevention of Hydrocephalus in the Developing World: Neurosurgical perspective - Dr B. Warf (E)
Paediatric perspective: Is the IMCI approach adequate? - Dr Martina Oneko (E)

- ETV

Procedure Cleaning Endoscopes (E)
Hydrocephalus in Uganda: the predominance of infectious origin and primary management with endoscopic third ventriculostomy - Dr B. Warf (E)
Comparison of third ventriculostomy alone and in combination with choroids plexus cauterization in infants younger than 1 year of age: a prospective study in 550 African children - Dr B. Warf (E)

- Bladder management

Clean Intermittent Catherisation protocol + 3 follow up sheets
Booklet: Neurogenic bladder management (for nurses)
Presentations:

The voiding system - Dr Oneko

Neurogenic bladder dysfunction - Dr Verpoorten

The neurogenic bladder made easy - Dr Verpoorten

Booklet: The user guide to intermittent catherisation

- Bowel Management

Booklet: Neurogenic bowel management (training booklet for nurses with guidelines on the bowel management programme)
The 6 pictures of the bowel (for teaching purposes)
Presentation: Bowel management - Dr Verpoorten

- General health care and rehabilitation care for children with Spina Bifida and Hydrocephalus (lectures)

General health care of developing countries - Dr Oneko
Shunting, first step in life long care - Dr Verpoorten
Cognitive functions and early stimulation - R. Schoyen
Mobility problem and early stimulation of children with Hydrocephalus - R. Zulianelli
CP and Hydrocephalus - Dr Oneko
Epilepsy - Dr Oneko
Pressure wound management - Dr Mavura
Folic acid to mothers at risk - A. Jeruto

All lectures are only available in Powerpoint presentations. If you want to receive all presentations on a cd-rom, please contact the IF office.

- General books:

WHO manual spina bifida in developing countries
Disabled Village Children; an updated edition is available through the Hesperian Foundation website
El niño campesino deshabilitado
Living with Spina Bifida (English, Arabic)
Liesje , book by IF president Pierre Mertens (Dutch, French, Norwegian, Italian, Slovak)

- Videos

At the end of the chain (English, Dutch)
Incontinence (English)

- Policy documents IF work in developing countries

IF policy document for Parent Groups connected to IF projects (English) + structure parent groups

IF leaflets and protocols can be ordered by email: Cet e-mail est protégé contre les robots collecteurs de mails, votre navigateur doit accepter le Javascript pour le voir

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