At its 2000 conference in Toulouse IF adopted a Resolution on prenatal diagnosis and the right to be different of people with Spina Bifida and/or Hydrocephalus. 

 

"At the 12th International Conference for Spina Bifida and Hydrocephalus in Toulouse with the theme “The Right to be Different” 270 people from 22 different countries - parents and adults with these impairments - came together to consider all elements involved in this theme.

Adults and the parents at the conference stated that people with Spina Bifida and/or Hydrocephalus live a full life with equal value to that of any other citizen.

Adults with Spina Bifida and/or Hydrocephalus stated very clearly that their quality of life is not a reason for abortion.

Parents and adults state that the impairment is not the burden. The burden is the constant struggle against inaccessible environments and inadequate systems, which should be their allies and should be supportive of them."