Brussels 21 May 2015 // In its resolution on the UN Convention on the Rights of Persons with Disabilities, adopted yesterday, the European Parliament calls for more measures to ensure that citizens with disabilities enjoy their right to free movement between the Member States on an equal footing with others. The International Federation for Spina Bifida and Hydrocephalus (IF) stresses that the EU obligations under the Convention (ratified by the EU in 2010) will not be complete until all children and adults with disabilities enjoy the right to cross-border healthcare without discrimination on the basis of disability.
31 March 2015 // International Federation for Spina Bifida and Hydrocephalus, in consultation with the members and experts, made a submission to the UN Committee on the Rights of the Child in view of its ongoing work to draft a General Comment on the Rights of Adolescents. In its submission, IF focused on the rights of adolescents with spina bifida and hydrocephalus during the sensitive stage of transition from childhood to adulthood. The submission covers the need for a multidisciplinary approach to transition, which includes high level of appropriate healthcare services, social and educational support as well as the importance of informal peer support. These elements are essential for fostering the young person's growing maturity and preparing her or him for an independent life in the community and the responsible self-management of health needs for the best attainable standard of health.
3 March 2015 // More than 8 million babies worldwide are born each year with a serious birth defect. Birth defects are a leading cause of death in the first year of life, and babies who survive may have life-long physical or mental disabilities. Spina bifida is the most common kind of neural tube defect (also called NTD). NTDs are birth defects of the brain and spinal cord. Birth defects are health conditions that are present at birth.