31 March 2015 // International Federation for Spina Bifida and Hydrocephalus, in consultation with the members and experts, made a submission to the UN Committee on the Rights of the Child in view of its ongoing work to draft a General Comment on the Rights of Adolescents. In its submission, IF focused on the rights of adolescents with spina bifida and hydrocephalus during the sensitive stage of transition from childhood to adulthood. The submission covers the need for a multidisciplinary approach to transition, which includes high level of appropriate healthcare services, social and educational support as well as the importance of informal peer support. These elements are essential for fostering the young person's growing maturity and preparing her or him for an independent life in the community and the responsible self-management of health needs for the best attainable standard of health.
3 March 2015 // More than 8 million babies worldwide are born each year with a serious birth defect. Birth defects are a leading cause of death in the first year of life, and babies who survive may have life-long physical or mental disabilities. Spina bifida is the most common kind of neural tube defect (also called NTD). NTDs are birth defects of the brain and spinal cord. Birth defects are health conditions that are present at birth.
2-5 March 2015 // WHO Department of Nutrition for Health and Development in collaboration with the International Clearinghouse of Birth Defects Surveillance and Research, the International Federation for Spina Bifida and Hydrocephalus, and the National Center on Birth Defects and Developmental Disabilities at United States Centers for Disease Control and Prevention (CDC) are convening an intermediate level training workshop on surveillance and prevention of congenital anomalies and preterm births in Arusha, United Republic of Tanzania from 2 to 5 March 2015.