Members

IF has two categories of membership: organisational membership and support membership.

Organisational members are officially registered associations of people with Spina Bifida and/or Hydrocephalus and/or their relatives, that work within a defined territory and are open to all people within this territory, unless the association is already a member through membership of an IF member.

Support membership is open to individuals, sympathizers, professionals, companies, students and anyone with an interest in Spina Bifida and/or Hydrocephalus. The annual fee for the IF support membership is 50€. Support members have no voting rights.

How to apply
To learn more about the IF organisational membership and instructions on how to apply, please download the IF Membership Subscription form.

Supporters can apply for membership through email: This email address is being protected from spambots. You need JavaScript enabled to view it.  and will become an "IF supporter" after payment of the fee.

Official IF members
 

Algeria
Association des malades de Spina Bifida de Mostaganem
http://spinabifida27.unblog.fr/

Argentina
Asociación Para la Espina Bífida e Hidrocefalia (APEBI)
http://www.apebi.org.ar

Australia
Spina Bifida Association Queensland
http://spinabifida.org

Northcott Spina Bifida Group
https://www.northcott.com.au

Austria
Spina Bifida und Hydrocephalus Österreich (SB&HÖ)
http://www.sbho.at 

Belgium
Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH)
http://www.spinabifida.be

Brazil
Associaçao de Espinha Bífida e Hidrocefalia do Rio de Janeiro (AEBH)

MIELOMENINGOCELE: AEBH

Bulgaria
Spina Bifida and Hydrocephalus-Bulgaria (SBHB)

http://www.sbhb.org

Colombia
Fundación Mónica Uribe Por Amor
https://www.facebook.com/FundacionMonicaUribePorAmor

Fundación Sin Barreras   
http://www.fundacionsin-barreras.org 

Croatia
Udruga osoba i roditelja djece sa spinom bifidom "Aurora"
https://www.facebook.com/udruga.aurora

Denmark
Rygmarvsbrokforeningen af 1988
http://www.rygmarvsbrokforeningen.dk

Estonia
The Estonian MMC and HC Society
http://www.kelluke.ee

Finland
Suomen CP-liitto ryi
http://www.cp-liitto.fi

France
Fédération Française des Associations du Spina Bifida (FFASB)
http://www.spinabifida.fr

Germany
Arbeitsgemeinschaft Spina Bifida und Hydrocephalus (ASBH)
http://www.asbh.de 

Greece
Hellenic Associaton for Spina Bifida and Hydrocephalus
www.appac.gr

Guatemala
Asociación Guatemalteca de Espina Bífida (AGEB)
http://www.agebguatemala.org/

Honduras
Fundación Amado Josue
http://fundacionamadojosue.org/

India
Spina Bifida Foundation
http://spinabifidafoundation.org/

Ireland
Spina Bifida Hydrocephalus Ireland (SBHI)
http://www.sbhi.ie

Italy
Spina Bifida Italia
http://www.spinabifidaitalia.it

Associazione Spina Bifida Italia (ASBI)
http://www.asbi.info

Japan
Spina Bifida Association of Japan
http://sba.jpn.com/

Kenya
Spina Bifida and Hydrocephalus Association Kenya (SHAK)
https://www.facebook.com/groups/163977997075186/

Lithuania
Spina Bifida ir Hidrocefalija asociacija
https://www.facebook.com/SpinaBifidaIrHidrocefalijaAsociacija

Luxembourg
Association pour le Spina Bifida a.s.b.l.
http://www.spina-bifida.lu/

Mexico
Asociación Mexicana de Espina Bifida, A.C. (AMEB)
http://www.facebook.com/group.php?gid=33253523321

The Netherlands
BOSK Work Group Spina Bifida & Hydrocephalus
http://www.bosk.nl

Nigeria
Festus Fajemilo Foundation
http://fesfajfoundation.org/

Norway
Ryggmargsbrokk- og hydrocephalusforeningen
www.ryggmargsbrokk.org

Peru
Asociacion Peruana de Espina Bifida e Hidrocephalia Arequipa (APEBHI)
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Asociación de Espina Bífida e Hidrocefalia del Perú (ASESBIH PERÚ)
http://www.asesbihperu.org

Poland
Stowarzyszenie Chorych z Przepukliną Oponowo-Rdezeniową R.P. (ASBP)
http://www.rozszczep.dzialam.org/

Fundacja "Spina"
http://www.spina.com.pl

Portugal
Associação Spina Bifida e Hidrocefalia de Portugal (ASBIHP)
http://asbihp.pt/

Romania
Asociatia Romana de Spina Bifida si Hidrocefalie
http://www.arsbh.ro/

Russia
Association of Spina Bifida and Hydrocephalus St. Petersburg
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.  

Scotland
Scottish Spina Bifida Association (SSBA)
http://www.ssba.org.uk

Serbia
Spina Bifida and Hydrocephalus Association of Serbia 
https://www.facebook.com/HISBAS

Slovakia
Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus, o.z.
http://www.sbah.sk

Spain  
Federación Española de Asociaciones de Espina Bífida e Hidrocefalia (FEBHI)
http://www.febhi.org

Associació Catalana d'Espina Bífida i Hidrocefàlia
http://www.espinabifida.cat 

Asociación Madrileña de Espina Bífida e Hidrocefalia – A.M.E.B
http://www.ameb.es

Sudan
Spina Bifida Federal Association
Cheshire Home Building

Sweden
RBU
http://www.rbu.se

Switzerland
Schweizerische Vereinigung Spina Bifida und Hydrocephalus (SBH)
www.spina-hydro.ch

Turkey
Spina Bifida Derneği
www.spinabifida.org.tr

UK
Shine - Spina bifida • Hydrocephalus • Information • Networking • Equality
http://www.shinecharity.org.uk

USA
Spina Bifida Association of America (SBAA)
http://www.sbaa.org 

 

Other contacts for Spina Bifida and Hydrocephalus
 

Belgium
Association Spina Bifida Belge Francophone (ASBBF)
http://www.vitamineb9.be 

Bulgaria
Bulgarian Academy for Developmental Rehabilitation
at Dejstwije Slantschev Latsch-Foundation 

Burkina Faso
Anomalies prénatales et hydrocéphalies Burkinabe (APHB)

Canada
Spina Bifida and Hydrocephalus Association of Canada (SBHAC) /
Association de spina-bifida et d'hydrocéphalie du Canada (ASBHC)
http://www.sbhac.ca

Spina Bifida and Hydrocephalus Association of Quebec
Association de Spina-Bifida et d'Hydrocéphalie du Québec
http://www.spina.qc.ca

Spina Bifida & Hydrocephalus Association of Ontario (SBHAO)
http://sbhao.on.ca

Chile 
Santiago S.P.B. and Hydrocephalus Self-Help Group (ACHEB) 

China
Driving Force
http://www.spinachina.com/

Colombia
Fundación de Niños con Hidrocefalia “FUNDAHID”
http://fundahid.blogspot.com/
FUNDAHID Facebook page

Czech Republic
Eeska asociace pro spinu bifidu a hydrocefalus (EASBaH),
Spina bifida a hydrocefalus
http://spinabifida.wz.cz/index.php

Djibouti
L’Association Spina-Bifida de Djibouti
Fax: +253 35 89 323
LO: Abdallah Khayari
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Dominican Republic
Bifid Spine Dominican Asociation, Inc. 

Honduras
Fundacion Hondurena de espina bifida e hidrocefalia (FUNHDESHI)

Hong Kong
The childhood Spina Bifida Support Group of Hong Kong

India
Indian Spina Bifida Association (ISBA)
http://indiaspinabifidaassociation.org

Indonesia
Komunitas Spina Bifida Indonesi

Malta
Spina Bifida and Hydrocephalus Association of Malta, Ghaqda Spina Bifida u Hydrocephalus

Mexico
The Mexican Association for Spina Bifida and Hydrocephalus
www.facebook.com/ameb.mx

Asociación de Espina Bífida de Nuevo León
www.espinabifida.org.mx

Palestina
Abu Raya Rehabilitation Unit
www.kaburaya.org

Philippines
A.N.A.K. Foundation
http://www.anakfoundation.org/

Puerto Rico
Asociación de Espina Bífida e Hidrocefalia de Puerto Rico, Inc.
www.espinabifidapr.com

Saudi Arabia
Saudi Spina Bifida Support Group
http://www.alsolb.com/

South Africa
The National Council for Persons with Physical Disabilities in South Africa (NCPPDSA)
Spina Bifida and Hydrocephalus project

Uganda
Cheshire Homes Kampala
http://katalemwacheshire.org/

Venezuela
Asociación Venezolana de la Espina Bífida (AVEB)
http://www.aveb.org/
This email address is being protected from spambots. You need JavaScript enabled to view it.

Zambia
Zambian Association for Spina Bifida and Hydrocephalus
https://www.facebook.com/groups/204551349718225/

Font Resizer

Decrease font size Default font size Increase font size

European Year 2014

COFACE Reconciling Work and Family

European Year 2013

European Year of Citizens Alliance

Sign up to our newsletter

Publications and Downloads

Annual Report 2012
 
IF's Catalogue World SBH Day 2012
 

Members in action

  Members acting to prevent NTDs