What is IF
IF has compiled a set of guidelines for national associations, to assist national associations in their development.
Given the importance and valuable work that each organisation does in its respective country for people with Spina Bifida and/or Hydrocephalus, IF strives to reinforce national organisations through a variety of activities like workshops, conferences, knowledge transfer, capacity building as well as consultancy and guidance.
Each year, the International Federation for Spina Bifida and Hydrocephalus (IF) presents the IF Award to an individual or organisation in recognition of the special contribution they have made to the service of people with disabilities in general or to people with Hydrocephalus and Spina Bifida in particular.
The International Federation for Spina Biﬁda and Hydrocephalus holds Special Consultative Status at the Economic and Social Council of the United Nations (renewed in 2007) and Participatory Status at the Council of Europe (renewed in 2009). Through the PROGRESS programme, IF holds a privileged relationship with the European Commission.
IF is a founding member of IF Child Help Belgium (11 September 2006), an organisation that focuses on Development Cooperation. IF is part of the Leaders Group of the Flour Fortiﬁcation Initiative (FFI), and a member of the Belgium Disability and Development Cooperation Initiative “1 op 10” (“one in ten”).
The IF president holds board member status at the European Disability Forum (EDF), the Bo Hjelt Foundation, the Flemish Spina Biﬁda and Hydrocephalus Association and is a member of the General Assembly of Light For The World Belgium.
Board members of IF liaise in their national organisation’s name with Atlas Alliance/NORAD (Norway) and SHIA (Sweden) to serve children with Spina Biﬁda and Hydrocephalus in Africa.