World Spina Bifida and Hydrocephalus Day

www.worldspinabifidahydrocephalusday.com

"Children with disabilities have the power to show that the barriers which they have to overcome are not as big as the barriers society puts in their way" Katarína Turčeková, Mother of a child with Spina Bifida and Hydrocephalus. Slovakia

In 2011, IF’s General Assembly designated 25 October as the World Spina Bifida and Hydrocephalus Day. IF and its member organisations will use this day to raise awareness about Spina Bifida and Hydrocephalus and the ways in which neural tube defects (NTDs) can be prevented. As from 2012 the World Spina Bifida and Hydrocephalus Day is celebrated every year. The World Spina Bifida and Hydrocephalus Day, led by the International Federation for Spina Bifida and Hydrocephalus and its member associations, is an opportunity to raise awareness and understanding about Spina Bifida and Hydrocephalus. It is also a way to advocate and promote the rights of persons with these impairments.

Why a World Spina Bifida and Hydrocephalus day?

Thanks to the continuous advances in medicine, healthcare services have been drastically improved for people with Spina Bifida and hydrocephalus. But despite this, many children and adults living with Spina Bifida and Hydrocephalus still don't have access to the right treatment and care services and stigma and discrimination remain a reality in many countries. Besides, people are not aware about many facts regarding Spina Bifida and Hydrocephalus and ways to prevent neural tube defects. The World Spina Bifida and Hydrocephalus Day is very significant as it reminds the public and policy makers that Spina Bifida and Hydrocephalus are a reality and that is imperative to increase awareness about them and improve the lives of people living with these impairments.

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European Year 2014

COFACE Reconciling Work and Family

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Supported by the European Commission - Directorate-General Justice. Integration of People with a Disability - via the PROGRESS programme

With the support of Bayer Healthcare

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