Human Rights

The treatment of Spina Bifida and Hydrocephalus in children and adults has improved dramatically during the past ten years, mostly through multidisciplinary care. All the resources within the IF network have been brought together to improve the quality of life of people with Spina Bifida and/or Hydrocephalus. Thanks to this, more and more of them are now going on to study, work, have children of their own and reach old age. Unfortunately, a blotch is appearing on the landscape of this continuing success story. Medical advances in prenatal diagnoses now give us unprecedented insights into the development of a foetus and these can sometimes fuel misplaced assumptions about the quality of a life that’s perceived as less than perfect.

At IF we believe that the facts must be evaluated ethically. That’s why we have taken the lead in this moral debate and why we defend both the right to life and the right to receive all available treatment to improve the quality of that life. By becoming an expert on most relevant issues, IF has substantially increased its influence in this international debate and now cooperates with partners all over the world to defend the rights of people with impairments.

In its efforts to establish equal opportunities for people with Spina Bifida and Hydrocephalus and combat discrimination at all levels of society, IF maintains a strong focus on two main ethical areas:

  • Human rights and inclusion of people with Spina Bifida and/or Hydrocephalus
  • The rights of children with Spina Bifida and/or Hydrocephalus in developing countries

IF has increasing influence in international issues, which are likely to affect people with Spina Bifida and Hydrocephalus and their families and is cooperating with other NGOs to defend the rights of people with disabilities worldwide. IF's actions are not of an isolated nature, but are part of a board partnership of organisations striving to end discrimination. Moreover, the opinions formulated and voiced by IF network are neither based nor influenced by religious or political leanings, and they are underscored by international legislation.  


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