The International Federation of Spina Bifida and Hydrocephalus will participate at the session of the United Nations Committee on the Rights of Persons with Disabilities (CRPD) to present its views on the progress made by the European Union towards full respect of human rights of persons with disabilities. The session will be held in Geneva on 27-28 August and bring together international disability experts, representatives of the European Union and disability activists.
13 August 2015 // Congratulations to the five members of the Youth Group: Ege Anli, Dominik Drdul, Rowan Ford, Elisa Garcia and Merlin Kizant! The 5 young people with spina bifida and/or hydrocephalus have been selected to represent young people with SBH and encourage them to become participative and to be active members. Currently, many SBH associations are managed by parents with children with disabilities which means IF runs the risk of losing touch with the actual needs of its members and operating as a voice of parents and caregivers.
Registration is now open for Equality, the 26th International Conference on Spina Bifida and Hydrocephalus
12 August 2015 // The International Federation for Spina Bifida and Hydrocephalus (IF) together with the Associazione Spina Bifida Italia (ASBI) have the pleasure to invite you to the 26th International Conference on Spina Bifida and Hydrocephalus: Equality. The conference will be held from Friday 16 October to Sunday 18 October 2015 at the Conference Center of Hotel Le Robinie in Solbiate Olona (Milan), Italy.
The conference aims to bring together people with Spina Bifida and Hydrocephalus, their families, healthcare professionals, service providers, researchers, policy makers and other interested parties.