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Brussels 9 June 2016 // The International Federation for Spina Bifida and Hydrocephalus (IF) is pleased to announce the launch of a new website, www.ifgoodpractices.org. The new site has extensive content on good practices developed by IF members to promote participation and to empower people with spina bifida and hydrocephalus (SBH).

european parliament 1Brussels 6 June 2016 // On 30 May, the European Parliament Committee Employment and Social Affairs (EMPL) voted in favour of the adoption of the own-initiative report on the implementation of CRPD Concluding Observations published in September 2015 ( Implementation of the UN CRPD with special regard to the Concluding Observations of the UN CRPD Committee). At the end of 2015, the EMPL Committee started drafting its own-initiative report led by MEP Helga Stevens.

Lieven ECRD2016 2Brussels 01 June 2016 // The 8th European Conference on Rare Diseases & Orphan Products (ECRD) was held on May 27th to 28th. The two days before, May 25th to 26th, the 2016 Rare Diseases International and Eurordis Membership Meetings took place in the same premises, in Edinburgh, Scotland.

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