From the new LATAM network for spina bifida and hydrocephalus: Genetic factors and social inclusion are fundamental worldwide!
6-7 June 2014 // During last two days Buenos Aires was filled with discussions on key topics for the Spina Bifida and Hydrocephalus (SBH) global community. Genetic factors of SBH, social inclusion, and the right to health were at the top of the agenda. Around 400 participants attended IF’s 25th International Spina Bifida & Hydrocephalus Congress: "GENErating Changes” and more than 200 people followed online. IF’s global network has been enlarged by welcoming six new organisations.
27 May 2014 // On 11 April 2014, the first Spina Bifida and Hydrocephalus Prevention and Care Partner Engagement meeting was held. It was organized by Boston Children’s Hospital, the International Federation for Spina Bifida and Hydrocephalus (IF), and CDC’s National Center on Birth Defects and Developmental Disabilities. It brought together representatives from 21 different organizations in academia, health services, private and public sectors, who came together to discuss ways to address challenges, help advance research, and strengthen and move forward prevention and care efforts in the fields of Spina Bifida and Hydrocephalus.
23 May 2014 // The 67th World Health Assembly approved the World Health Organization (WHO) global disability action plan 2014–2021: Better health for all people with disability. This action plan outlines why specific action is required to ensure better health for persons with disabilities and gives clear objectives to achieve this through access to mainstream healthcare, rehabilitation, assistive technology, technical support and improved data. IF took part in the WHO consultation that was launched last year and highlighted areas of importance to people with Spina Bifida and Hydrocephalus.