South Africa: brand new association for people with SBH

The board of ASBAH SA with dr Carla Verpoorten and Lieven Bauwens2 October 2014 // The new Association for Spina Bifida and Hydrocephalus South Africa was launched during a ceremony in Cape Town last week.

Supported by a committed group of board members and experts, Zubeida Toefy (front middle) expressed a great ambition for the next couple of years. ASBAH SA intends to reach out to the different South African provinces and wants to develop, together with the South-African experts, a place where all persons with Spina Bifida and Hydrocephalus would be able to receive the right support.

The launch of ASBAH SA coincided with a workshop at the Red Cross War Memorial pediatric Hospital on multidisciplinary care for children with SBH in South Africa. This project started in March 2014 with the publication of 2 volumes of Continuing Medical Education in the South African Medical Journal:

Access to healthcare for all! 25 October #WSBHD


25 October #WSBHD
The World Spina Bifida and Hydrocephalus Day was held for the first time on 25 October 2012 at the European Parliament in Strasbourg. Supported by the WHO, IF members from all over the world made this event a great success. On 25 October 2013 we celebrated the launch of our PUSH platform and met at the European Parliament in Brussels to discuss the importance of access to healthcare. This debate continues in 2014 with our Global Campaign. Do you plan to organise some activities connected to the World Spina Bifida and Hydrocephalus Day on 25 October or around this date? This email address is being protected from spambots. You need JavaScript enabled to view it. and share your ideas and actions with the SBH community from all around the world! 

Mutual learning and advocacy workshop for all European IF member associations

Please save the dates of 16-19 October in your agendas - we look forward to welcoming you in Dublin and continuing our fruitful cooperation!

IF is organising its second members' workshop in the framework of our European project "S.H.A.P.E. OUR FUTURE". Building on the success of our first workshop in Bratislava that took place in May 2014, we decided to expand the participation of all European IF members in the second workshop to maximise the learning and exchange process. IF Board meeting will be held in parallel, and after our workshop, we will all have the opportunity to participate in the international conference organised by Spina Bifida Hydrocephalus Ireland (SBHI), our Irish member who will be our host in Dublin.

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European Year 2014

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Supported by the European Commission - Directorate-General Justice. Integration of People with a Disability - via the PROGRESS programme

With the support of Bayer Healthcare

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