Brussels 01 June 2016 // The 8th European Conference on Rare Diseases & Orphan Products (ECRD) was held on May 27th to 28th. The two days before, May 25th to 26th, the 2016 Rare Diseases International and Eurordis Membership Meetings took place in the same premises, in Edinburgh, Scotland.
27 May 2016, Brussels // During the 69th World Health Assembly side event “Assistive Technology for all” WHO launched the WHO Priority Assistive Products List (APL), the 50 priority assistive products.
Today only 1 in 10 people have access to assistive technology, due to a lack of financing, availability, awareness, trained personnel, and high costs. There are already large underserved populations for basic assistive products, even in high-income countries. This represents a wider system failure and lack of appropriate policy, products and services across the world.
Brussels 24 May 2015 // IF, together with EDF and EPF, is launching a questionnaire, which will measure the impact of the Cross-Border Healthcare Directive on persons with disabilities and persons with chronic diseases in Europe. It is an opportunity for people to share their experience with cross border healthcare and help us influence the European debate on healthcare. We want to make sure that the voices of people with disabilities and chronic diseases are heard.