Brussels 29 July 2016 // To assist its members in their advocacy work, IF has published its "Statement on Multidisciplinary Care for the treatment of children and adults born with Spina Bifida and Hydrocephalus". It is essential that all specialists and services cooperate and coordinate to make sure that children and adults with SBH achieve the highest attainable standard of health. In addition, receiving multidisciplinary care will reduce the need for multiple appointments, often at different locations. Services need to be age-appropriate and should include measures to ensure a proper transition from paediatric to adult multidisciplinary care for SBH.
Brussels 15 July 2016 // The Netherlands ratified the Convention on 13 July 2016, bringing the total number of States Parties to the CRPD to 166 and total ratification of the Optional Protocol to 89.
Brussels 13 July // The report covers the work of the International Federation for Spina Bifida and Hydrocephalus (IF) for the year 2015.
The report explains the values that guide IF's work and the strategies it is developing to reduce the incidence of spina bifida and hydrocephalus (SBH) by primary prevention, and to improve the quality of life of people with SBH and their families.