spina bifida sexuality survey16 September 2016 // If you are an adult with spina bifida, researchers at Indiana University School of Medicine want to hear from you! They  are interested in learning more about the sexual health of adults with spina bifida worldwide. If you are 18 or older and have spina bifida, you can participate, whether or not you ever had sex. The survey is only available in English. You will be asked questions about your background, your experiences with spina bifida, and your sexuality (feelings about sex, sexual behaviors, and desires for a family). The online survey takes only 15-20 minutes.

All your answers are confidential and completely anonymous. No one you know will see your answers. Even the researchers will not be able to identify who you are or your answers. You can withdraw from the study at any time. To go to the survey, go to this link: https://goo.gl/NocVRR

Logos of the Alliance members6 September 2016 // the European Parliament will be called on to vote the report on “Creating labour market conditions favourable for family-work balance”.

IF is partnering with 10 networks of NGOs and Local Authorities and since 2012 we have been working together to raise awareness about the daily challenges faced by women and men across the EU in reconciling their work, family and private life. We represent millions of children, adults and families across the EU, and we are calling on Members of European Parliament to cast a positive vote for this report.

SBA logo5 September 2016 // The Spina Bifida Association, our partner in the PUSH Global Alliance, is continuing efforts to improve the health of those living with Spina Bifida and is pleased to announce the Third World Congress on Spina Bifida Research & Care.

There is still time to submit abstracts to present at the Third World Congress on Spina Bifida Research and Care, which will be held in San Diego in March 2017. Please follow this link to submit abstracts. 

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