Survey discrimination in access to healthcareBrussels 15 June // Besides occasional reports from IF members that people with SBH are discriminated in access to healthcare, there is a lack of concrete substantial data collected across the EU in this regard. We want to change this, which is why we are launching a survey that will map the situation of access to healthcare for persons with Spina Bifida and Hydrocephalus in Europe.

https://www.surveymonkey.com/r/DiscriminationAccessHealthcare_EN

Brussels 9 June 2016 // The International Federation for Spina Bifida and Hydrocephalus (IF) is pleased to announce the launch of a new website, www.ifgoodpractices.org. The new site has extensive content on good practices developed by IF members to promote participation and to empower people with spina bifida and hydrocephalus (SBH).

european parliament 1Brussels 6 June 2016 // On 30 May, the European Parliament Committee Employment and Social Affairs (EMPL) voted in favour of the adoption of the own-initiative report on the implementation of CRPD Concluding Observations published in September 2015 ( Implementation of the UN CRPD with special regard to the Concluding Observations of the UN CRPD Committee). At the end of 2015, the EMPL Committee started drafting its own-initiative report led by MEP Helga Stevens.

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