Brussels 15 June // Besides occasional reports from IF members that people with SBH are discriminated in access to healthcare, there is a lack of concrete substantial data collected across the EU in this regard. We want to change this, which is why we are launching a survey that will map the situation of access to healthcare for persons with Spina Bifida and Hydrocephalus in Europe.
Brussels 9 June 2016 // The International Federation for Spina Bifida and Hydrocephalus (IF) is pleased to announce the launch of a new website, www.ifgoodpractices.org. The new site has extensive content on good practices developed by IF members to promote participation and to empower people with spina bifida and hydrocephalus (SBH).
Brussels 6 June 2016 // On 30 May, the European Parliament Committee Employment and Social Affairs (EMPL) voted in favour of the adoption of the own-initiative report on the implementation of CRPD Concluding Observations published in September 2015 ( Implementation of the UN CRPD with special regard to the Concluding Observations of the UN CRPD Committee). At the end of 2015, the EMPL Committee started drafting its own-initiative report led by MEP Helga Stevens.