Promoting the rights of people with spina bifida and hydrocephalus in Africa

Cost/benefit workshop in Tanzania aimed for estimating the value of flour fortification in Africa

18 December 2013 // Last week IF Secretary General participated in a cost/benefit workshop in Tanzania to equip leaders from various African regions to calculate the economic benefit of cereal grain fortification. The event has been organized by Smarter Futures Partners. It gathered participants from eastern and southern Africa which are already fortifying flour or are in the planning stage, for example Tanzania, Zambia, Mozambique, Namibia, Botswana, Zimbabwe, Kenya, Uganda, Ethiopia, South Africa, Rwanda and Burundi. Participants represented various sectors, such as health, economic or finance ministries; National Fortification Alliances, and financial experts from milling companies.

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The new Rights, Equality and Citizenship Program 2014-2020

Consilium11 December 2013 // The Council of the European Union adopted the Rights, Equality and Citizenship Programme for the period 2014 – 2020. It will have a budget of 439,473 million euros aimed at financing actions to promote the rights of European citizens, the principles of non-discrimination and equality between women and men, the right to protection of personal data, the rights of the child and consumers' rights. It will include among the Programme's objectives the prevention and fight against racism, xenophobia and homophobia, the rights of persons with disabilities, as well as the protection of victims of violence.

Among others also civil society and NGOs will have access to funding. The programme will finance actions with European added value, including national and small-scale projects. Actions that can be supported include awareness-raining campaigns, training activities (such as workshops and seminars), collection of data, surveys and cross-border cooperation. The allocation of funds will be organised by the Commission by a call for application further on.

Quality of Life in Spina Bifida Study

Take part in the Quality of Life in Spina Bifida survey!10 December 2013 // Take part in the global Quality of life in children and adults with SpinaBifida survey of the Division of Pediatric Urology at Riley Hospital for Children under the supervision of Dr. Rosalia Misseri and help improve care for all!

The study is open to anyone over the age of 8 with Spina Bifida who had spine surgery as a newborn as well as their caregivers/parents. Participants are welcome from all over the world! More information can be found on the survey page: http://www.surveymonkey.com/s/QSB.
Taking part in this study is voluntary. You may choose not to take part or leave the study at any time.

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