Our wish-list for the Hellenic Presidency

The establishment of the European Reference Networks will benefit people with Spina Bifida and Hydrocephalus7 January 2014 // Following Lithuania, Greece took over the Presidency of the European Union from January to June 2014. The Greek priorities amongst others will focus on enhancing civic and society engagement in the EU, through policies and initiatives in response to citizens’ everyday problems, concerns and insecurities. People with spina bifida and hydrocephalus are indeed the group of citizens facing these multiple challenges every day.

As they stated, the Greek Presidency will work towards promoting successfully implemented initiatives and cooperation between Member States towards more effective health systems and better health. IF believes that some efforts will be dedicated to the Directive 2011/24/EU on patients' rights in cross-border healthcare, in particular the European Reference Networks that Member States should develop.


Looking back at 2013 in four steps

Looking back at 2013 in four steps24 December 2013 // On behalf of the International Federation for Spina Bifida and Hydrocephalus (IF) Board and secretariat members I would like to wish you a relaxing winter holiday season and a festive start to 2014, which I hope will be a successful year for you both personally and professionally.

Looking back at 2013, our organization has witnessed a very successful and eventful year. I would like to take this opportunity and invite you to review past activities and our latest initiatives.

We would be delighted to welcome you as a PUSH member in 2014. We are looking forward to various conferences, meetings and trainings across the world, and of course, our upcoming Annual General Assembly in Argentina.

Further, we invite you to visit our website regularly, follow us on Twitter and to like us on Facebook to receive the latest updates from our organization.

Lieven Bauwens, IF Secretary General


Towards a democratic and more inclusive European Citizenship

One of the recommendation: EU institutions and Member States  should adopt the proposed  ‘European Accessibility Act: improving accessibility of goods and services in the Internal Market’ in order to further ensure access to goods and services for all its citizens, and in particular for persons with disabilities.20 December 2013 // Last week, the closing conference of the European Year of Citizens took place in Vilnius. The event gathering over 300 people highlighted the work realized by the Alliance of 62 European networks and more than 4000 individual organisations to promote the idea of a more open, inclusive and participative Europe.

The recommendations prepared by the European Year of Citizens Alliance and to which IF contributed – were handed over by the Alliance Chair Jean-Marc Roirant to Viviane Reding, Commissioner for Justice, Fundamental Rights and Citizenship, who committed to take them into consideration in the preparation of the final report for this European Year published by the European Commission. 


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European Year 2014

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Supported by the European Commission - Directorate-General Justice. Integration of People with a Disability - via the PROGRESS programme

With the support of Bayer Healthcare

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