IF organised a Capacity Building Workshop “Adults, and now?” for Disabled People Organisations of persons with Spina Bifida and Hydrocephalus. The workshop took place in the morning of the 23rd October 2012 in the European Parliament in Strasbourg within the framework of the celebration of the World Spina Bifida and Hydrocephalus Day. The workshop aims to increase the capacity of Disabled People Organisations (DPOs) to advocacy for the rights of adults with Spina Bifida and Hydrocephalus. Due to improved medical care, it is predicted that the numbers of adults and elderly people with SB-H will rise dramatically over the next few decades. DPOs and governments need to take action now to ensure that these people have access to work and care to lead healthy and active lives.
The First World Spina Bifida and Hydrocephalus Day will be officially celebrated on 25 October 2012 under the theme “UNFOLD their potential, (Y)our Return on Investment”. It will be marked by a photography exhibition organised by the International Federation for Spina Bifida and Hydrocephalus and its member associations with the patronage of Mrs. Diane Dodds, Non-attached Member of The European Parliament. The Exhibition will take place from the 22nd to the 25th October 2012 in the European Parliament in Strasbourg. It will be formally opened with a ceremony on the evening of the 23rd by Mrs. Diane Dodds (Non-attached Member of The European Parliament), Mr. Karl Freese, (Health Information, Directorate General for Health and Consumers, European Commission), Mr. Jan Jařab, (Regional Representative of the UN Office for Human Rights, Regional office for Europe) and Mr. Pierre Mertens (IF president).
The World Health Organisation (WHO) welcomes the first World Spina Bifida and Hydrocephalus Day, which is celebrated worldwide on 25 October 2012. On that occasion WHO hosted an IF Exhibition in Switzerland. The photos displayed in the exhibition are the result of a project conducted by IF in collaboration with the Belgian Royal Academy for Fine Arts (Koninklijke Academie voor Schone Kunsten – KASK). Within the framework of this project, the photographer, Io Cooman, follows the life of Ambrose, a 29-year old occupational therapist working for Organized Useful Rehabilitation Services (OURS). Ambrose’s motto is “disability is not inability” and he works tirelessly to improve the survival and quality of life of people with SB&H.