PUSH! Global Alliance Issues Report Cards, Calls for Folic Acid Fortification on World Birth Defects Day
Brussels, 3 March 2016 // An international group of organizations working together on spina bifida and hydrocephalus is calling on the public and policy makers to take action to prevent these serious birth defects in observance of World Birth Defects Day.
The PUSH! Global Alliance (People United for Spina Bifida and Hydrocephalus) today launched its website and Global Report Cards providing country-level information on hydrocephalus and spina bifida prevention efforts, access to care, quality of life, and availability of prevalence and mortality data. See the information online at www.pu-sh.org.
Brussels 29 February 2015 // 29 February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS to raise awareness of rare diseases and their impact on patients' live. This year the theme is “Patient Voice - Join us in making the voice of rare diseases heard” because patients have a basic role to improve their lives and the lives of their families and to urge change.
Brussels 19 february 2016 // The European Parliament’s Employment Committee organised a meeting focused on the implementation of the UN’s recommendations to the EU and the role of the European Parliament.
The European Parliament is drafting a report on the UN’s recommendations to the EU, under the leadership of MEP Helga Stevens from the Committee on Civil Liberties, Justice and Home Affairs (LIBE).