The eighth edition of the National Spina Bifida Day in Italy: 2011, Set the rights free for a better future.

Between 22 and 30 October 2011, theAssociazione Spina Bifida Italia organizes the eighth edition of the national week of Spina Bifida. During this week, the Associazione Spina Bifida Italia will organize series of initiatives to reach the public and the medical institutions in Italy in order to raise awareness of the rights of people with Spina Bifida and their families. The association will promote its communication campaign "Diamo a chi è affetto da Spina Bifida un mondo all'altezza dei suoi sogni" (Let’s give people with Spina Bifida a world of their dreams). Among the activities envisaged for this one week event, there will be conferences in Milan, Parma and Rome. The full program is available (only in Italian) in this link cliccando qui.

The conference called for an improved prevention and renewal of careThe Dutch patient association BOSK in collaboration with  the caregivers (SSSBW) has organized a conference entitled “Endangered Care”: about the future of Spina Bifida care on 7 October 2011 in Zeist. The conference was meant for healthcare professionals, people with spina bifida and their parents, politicians, Government policy makers and health insurers. Through this conference, BOSK and the professionals involved have addressed the issue of reduced interest in care for people with spina bifida and discussed ways to ensure patients’ care as well as professionals’ expertise. IF was represented by its president Mr. Pierre Mertens who gave a presentation on prevention.

The workshop marked the adoption of Rwanda's drafted food fortification levels as official fortification standards - a first-time-in-history for Rwanda.September 22 marked a significant milestone for Rwanda's efforts to implement a comprehensive national food fortification program: the formal adoption of Rwanda-specific fortification standards by the Bureau of Standards for maize and wheat flour, edible oils, sugar, and salt. The fortification standards in Rowanda were adopted in a two-day stakeholders workshop organized on 22 and 23 September. The workshop brought together government officials, laboratory technicians, academia, importers, and local producers to review the drafted fortification levels and discuss next steps around implementation. The Government of Rwanda will officially present Rwanda's fortification standards at an ECSA Summit next month to ensure harmonization.

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