Community-based rehabilitation saves lives

In the districts of southeastern Uganda many children with Spina Bifida and Hydrocephalus (SBH) are referred to and treated at CURE Children's Hospital in Mbale. However, the long-term survival of these children and its important determinants are unknown. IF's medical advisor Dr. Benjamin Warf, together with Drs. Wright and Kulkarni, studied the data of 140 children treated for SBH at CURE Uganda. Districts with active community-based rehabilitation programmes showed significantly higher survival rates for these children, approaching that for their unaffected peers. Adequate home and community support after discharge from the hospital appears essential to continued survival. Their study "Factors affecting survival of infants with myelomeningocele in southeastern Uganda" is published in the Journal of Neurosurgery: Pediatrics.
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CBR programmes are crucial for the survival of children treated for Spina Bifida and Hydrocephalus

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No link between folic acid and increased colorectal cancer risk

Scientists from the Epidemiology Research Program of the American Cancer Society investigated the association between folate intake and colorectal cancer by studying the data from almost 100,000 men and women. They concluded that intake of high levels of total folate reduces the risk of colorectal cancer and that there is no evidence that dietary fortification or supplementation with Folic Acid increases colorectal cancer risk. Their study "High Levels of Folate, from Supplements and Fortification, Are Not Associated with Increased Risk of Colorectal Cancer" is published in the journal Gastroenterology. The researchers note that although many known colorectal cancer risk factors were accounted for in the study, unmeasured confounding remains possible.
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No evidence that mandatory flour fortification with Folic Acid and the use of Folic Acid supplements increase the risk of colorectal cancer

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SBA 2011 Conference Today's Magic, Tomorrow's Vision

The Spina Bifida Association (SBA) in the USA is organising its 38th National Conference, which will be held at the Disneyland Hotel, Anaheim, California, from June 26 - June 29, 2011. Children and adults with Spina Bifida, their families, physicians, nurses, and other clinicians have the unique opportunity to gain information on the latest medical care and network on various issues which affect their lives and professions. Dr. N. Scott Adzick, one of the primary investigators for the Management of Myelomeningocele Study (MOMS), will provide an overview of the first outcomes from this groundbreaking research into Spina Bifida treatment. New this year: SBA will be offering a Spanish-language Education Day on June 26. Visit www.spinabifidaconference.org for more information.
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Kids!Camp, Adult Day, the SB Health Care Professionals Day and many educational sessions are all part of the SBA conference

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European Year 2014

COFACE Reconciling Work and Family

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Supported by the European Commission - Directorate-General Justice. Integration of People with a Disability - via the PROGRESS programme

With the support of Bayer Healthcare

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