110215 Avon Woman of the Year 2010 Guatemala

AGEB president Mónica de Birnie - Avon Woman of the Year

For the past 10 years Avon Central America has been handing out the Woman of the Year award. The goal of the award is to honour women who through their involvement in humanitarian projects make a contribution to society. In August 2010 Avon Central America issued a call for candidates for the award. Next a qualified jury studied the entries to select the winner out of more than 35 nominees. Mónica Lorena Hernández de Birnie, president of the Association for Spina Bifida in Guatemala (AGEB) was chosen as Avon Woman of the Year 2010. As a mother of a 13-year-old daughter with Spina Bifida she always actively searched for information to help her daughter. In 2006 she joined AGEB as a volunteer, in 2007 she was elected vice president and then president. As president of AGEB she coordinates, promotes and develops support and prevention programmes.
AGEB received 20.000 USD to assist the organisation in its activities


110214 SSBA Firewalk Challenge

SSBA's Firewalk Challenge 2011

The Scottish Spina Bifida Association (SSBA) have teamed up with Firewalking experts ‘Soulfire Limited’ to provide their supporters with the spectacular opportunity to walk across 20 feet of burning embers in this extraordinary challenge. The challenge itself is not just about walking on fire but about learning skills which you can use in everyday life, having fun with team building skills and making new friends. The Challenge takes place on March 26 in Edinburgh and runs for three hours end to end. All participants start the evening with a private, motivational, fear busting seminar, designed to equip them with the skills to walk barefoot, unharmed across 20 feet of wood embers burning at 1236 degrees Fahrenheit. Read more on the SSBA website.
The training is based around proven motivational and psychological methods


110210 folate advocacy campaign in Sao Paolo

IF member organisations kick-off folate advocacy campaign in Sao Paulo

APEBI president Elena Zappoli of Buenos Aires, Argentina, IF liaison officer for AEBH Rozangela Santos of Rio de Janeiro, Brazil, IF board member Dr. Erwin Calgua from Guatemala and IF Secretary General Lieven Bauwens participated in a Bayer Schering Pharma Latin-American workshop on folate advocacy. IF and Bayer Schering Pharma have been teaming up in the European Union for the last 1.5 years to help prevent Neural Tube Defects and are expanding the partnership to other regions in the world. The two-day kick-off event in Sao Paulo, Brazil, brought together BSP regional and global staff and IF representatives to develop a strategy and disseminate good practice.

Participants of the folate advocacy workshop in Sao Paulo, Brazil


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European Year 2014

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Supported by the European Commission - Directorate-General Justice. Integration of People with a Disability - via the PROGRESS programme

With the support of Bayer Healthcare

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