IF condemns the concept of 'After-birth abortion' which means killing newborn children because they are not welcome. The 'After-birth abortion' was featured in an article, written by Dr. Alberto Giubilini from Italy and Dr Francesca Minerva from Australia, and published in the Journal of Medical Ethics. They cite the Groningen Protocol (2002) that proposes that new-borns with specific disabling conditions like Spina Bifida, possibly leading to a life of pain and suffering, should be allowed to die.
It is with great sadness that we share the news that Greg Liptak, MD succumbed to a very long illness this past weekend. This is an incredibly sad time for the Spina Bifida community. We have lost a good friend, an exceptional colleague and a kind physician.. Greg was a leader of the Professional Advisory Council during very challenging times for the Spina Bifida Association USA. He served with uncommon skill and dedication and remains the “gold standard” for everyone who has worked with him.
The World Spina Bifida and Hydrocephalus day has been established and designated on IF's General Assembly in Guatemala 2011. The World Spina Bifida and Hydrocephalus day is an opportunity to raise awareness and understanding about Spina Bifida and Hydrocephalus. It is also a means to advocate and promote the rights of persons with these impairments. For this occasion, IF has created a new website www.worldspinabifidahydrocephalusday.com. The website is a platform to share information and promote activities organised to mark the World Spina Bifida and Hydrocephalus day.