Danny Lamb in Kampala, Uganda. November 2011Canadian singer with hydrocephalus, Danny Lamb, meets our youth during IF African workshop 2011 in Uganda. This has been marked as the start of our international youth network that will be built upon in the coming months. The following music video is a great result that emphasizes the wonderful lyrics of Mrs. Johnston’s song “The Simple Things”. Click the read more link to watch the video and learn more about Danny Lamb. 

IF looks into possibilities to empower and support Spina China

In response to an invitation from Spina China, Pierre Mertens, IF president, visited the organisation and had meetings with different stakeholders. The aim of the visit was to get a better understanding of the situation of children, families and adults with Spina Bifida and Hydrocephalus in China. FFI estimates the yearly cases of Spina Bifida in China at 24493. 


The wining entrant will receive a reward of 2000€ IF, in collaboration with Diane Dodds, Member of the European Parliament, is organising a photography exhibition. The selected photos will be displayed in an exhibition entitled "(Y)our Return on Investment" that will take place in the European Parliament in Strasbourg from 23 to 25 October 2012 to celebrate the first “World Spina Bifida and Hydrocephalus Day”. Deadline to submit pictures for the competition is 15 February. 

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