The Better Care Network and EveryChild are pleased to introduce the latest paper in the Better Care Network working paper series. The report "Enabling reform: Why supporting children with disabilities must be at the heart of successful child care reform" focuses on children with disabilities and alternative care. It demonstrates the urgent need to place disability at the heart of the child care reform agenda. Millions of children with disabilities around the world continue to be placed in harmful forms of institutional care, and such care has been clearly shown to damage child development and to enhance the isolation, vulnerability to abuse, and, in some cases, disabling conditions of children with disabilities.
2012 is the European Year of Active Ageing and Solidarity between Generations. Ageing can present specific challenges for people with Spina Bifida and Hydrocephalus. In the context of this European Year of Active Ageing, the International Federation for Spina Bifida and Hydrocephalus is producing a paper on the particular challenges faced by people with Spina Bifida and/or Hydrocephalus as they age, and recommendations for action at both a national and European level in order to address these challenges. To help us produce this paper, we’d like to hear the views of as many people as possible who have experience of Spina Bifida and/or Hydrocephalus. We therefore kindly like to ask you to fill out the 10 questions of our online survey before April 11th, 2012.
IF condemns the concept of 'After-birth abortion' which means killing newborn children because they are not welcome. The 'After-birth abortion' was featured in an article, written by Dr. Alberto Giubilini from Italy and Dr Francesca Minerva from Australia, and published in the Journal of Medical Ethics. They cite the Groningen Protocol (2002) that proposes that new-borns with specific disabling conditions like Spina Bifida, possibly leading to a life of pain and suffering, should be allowed to die.