The mission of the International Federation for Spina Bifida and Hydrocephalus is:

  • to reduce the incidence of spina bifida and hydrocephalus by primary prevention
  • and to improve the quality of life of people with SBH and their families through human rights education, political advocacy, research and community building.

IF Goals

IF goals

Mr. Lieven Bauwens: Secretary General

Ms. Renée Jopp: Information Officer

Ms. Stefania Pirani: Programme Manager Europe

Ms. Katalijne Van Diest: Programme Manager International Solidarity

Ms. Ewa Kampelmann: Communications Officer

Ms. Anna Paakkulainen: PA/ Administrator

The IF Board meets 2 times a year during 3 days over weekends. These meetings are held in different countries and connected where possible with local meetings and study visits. Between the Board meetings, working meetings are organised when necessary.

Board Members
Mr. Pierre Mertens, President 
Ms. Eli Skattebu
Mrs Elena Zappoli
Mrs. Thelma Cloake
Mrs. Eva Toft 
Mr. Erwin Calgua 
Mr. Luis Quaresma 
Mrs. Margo Whiteford 
Mr. Douglas Sorocco
Mrs. Jackie Bland

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European Year 2015

European Year for Development 2015

Strategic Plan

European Year for Development 2015

Annual Report 2014

IF Annual Report 2014

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