8th APEBI Marathon in Buenos Aires City
On November 25th, 2012, IF member APEBI from Argentina held its 8th Marathon in Buenos Aires City. Under the motto "Along the Same Path", the marathon united persons with disabilities, amateur runners, professional runners, and anyone willing to get involved in APEBI's commitment towards health and autonomy. This Argentinian sport and recreational activity is of public interest as it is also a major initiative to promote preventive measures and measures to improve the quality of life of people with some type of disability. The marathon is the corollary of the National Folic Acid Intake Awareness Week which ran from November 12-18 in Argentina.
Progress in Spina Bifida and Hydrocephalus treatment in Ethiopia and Somaliland
Increased cooperation between BethanyKids at Kijabe Hospital in Kenya and stakeholders in Ethiopia and Somaliland is starting to improve the treatment and care of children born with Spina Bifida and/or Hydrocephalus. In Ethiopia a nurse, Mahalet, from the Myungsung Christian Medical Center (MCM) has received training in Kijabe and is now doing a superb job teaching mothers how to do a bladder evaluation. In Somaliland the Edna Adan Maternity Hospital is offering surgery for children with Spina Bifida and/or Hydrocephalus. All surgical procedures are done by, or under the direct supervision of, a general surgeon or Somali doctor Deeqa Cumar, who has been trained in shunt surgery. Dr. Cumar also does bladder evaluations and she teaches mothers how to do this procedure themselves.
IF's position paper on ageing with Spina Bifida and Hydrocephalus
In 2012, the European Year for Active Ageing and Solidarity between Generations, the International Federation for Spina Bifida and Hydrocephalus (IF) is issuing a position paper “(y)our Return on Investment Ageing with Spina Bifida and Hydrocephalus - No Time to Lose –“. The aim of this paper is to draw attention to the challenges faced by people with Spina Bifida and Hydrocephalus as they age in three key areas: health, employment, and social inclusion. It highlights the pressing need for expert, multi-disciplinary care and support for a generation of people. It is imperative that policy makers take urgent action to combat the problems faced by people with Spina Bifida and Hydrocephalus as they age. They are the first with these conditions to reach their senior years and want to enjoy their older years in the same manner as other people their age.
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