Brussels 25 November 2015 // On the last day of February, usually the 28th, but in 2016 on February 29, a rare day in a leap year, the World Rare Disease Day takes place to raise awareness of rare diseases and to improve access to treatments and medical representation for individuals with rare diseases and their families.
The theme for the 9th annual World Rare Disease Day is “Patient Voice” to recognise the role that patients play in making their voices heard and in encouraging change that improves their lives.
Brussels 11 November 2015 // Delegates from 30 organizations of persons with disabilities (DPOs) in Africa, members of the African Disability Forum (ADF), held their first General Assembly meeting, 31 Oct.-1 Nov. 2015 at the Desmond Tutu Conference Center in Nairobi, Kenya. ADF is the pan-African membership organization of DPOs at continental, sub-regional and national levels, created to unify and amplify the voice of persons with disabilities in Africa and strengthen the technical capacity of their organizations.
Brussels 10 November 2015 // IF’s Annual African workshop ”Lifelong care” that took place at the Fringilla Lodge in Lusaka, Zambia, from 5 to 7 November 2015 was a great success and was well attended by representatives of IF member organisations from Norway and Sweden and people engaged in the field of spina bifida and hydrocephalus from 8 African countries. Smarter Futures, a partnership for Africa of the International Federation for Spina Bifida and Hydrocephalus participated in the workshop.