28 February 2015 // marks the eighth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from more than 80 countries and regions worldwide are planning awareness-raising activities around the slogan Day-by-day, hand-in-hand.
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
On Tuesday 3 February 2015 // DRIVERS showcased its policy recommendations for improving health equity at its conference ‘Tackling societal challenges: solutions from DRIVERS for Health Equity’. The event, co-hosted by Julie Ward MEP (S&D, UK) and Eider Gardiazabal Rubial MEP (S&D, ES), brought together European and national policy-makers, civil society, industry and academics to discuss how DRIVERS’ latest evidence can be taken forward and integrated into existing and future policy initiatives.
A network of 12 leading global health organizations announces the first annual World Birth Defects Day, to be observed March 3, 2015. The purpose of this observance is to raise awareness about the occurrence of birth defects, develop and implement primary prevention programs, and expand referral and care services for all persons with birth defects.