19 September 2016 // IF will soon be starting its exciting new Global Prevention Initiative (GPI), which will be officially launched on October 28 by HRH Princess Astrid of Belgium at the IF Turning Points conference in Ghent. Join our Thunderclap campaign to help raise awareness for this important event!

The GPI is the first initiative of its kind, that aims to tackle the primary prevention of Neural Tube Defects and Hydrocephalus as a united global community. By joining forces and addressing the issue together, we can support sustainable action and awareness on a global level, to maximise the prevention of these disabilities. We will help to support all IF members, and WHO member states in developing regional and national plans for the implementation of effective interventions to prevent birth defects, including the development and delivery of effective prevention initiatives and food fortification strategies, in line with the aims of the WHO.

spina bifida sexuality survey16 September 2016 // If you are an adult with spina bifida, researchers at Indiana University School of Medicine want to hear from you! They  are interested in learning more about the sexual health of adults with spina bifida worldwide. If you are 18 or older and have spina bifida, you can participate, whether or not you ever had sex. The survey is only available in English. You will be asked questions about your background, your experiences with spina bifida, and your sexuality (feelings about sex, sexual behaviors, and desires for a family). The online survey takes only 15-20 minutes.

All your answers are confidential and completely anonymous. No one you know will see your answers. Even the researchers will not be able to identify who you are or your answers. You can withdraw from the study at any time. To go to the survey, go to this link: https://goo.gl/NocVRR

Logos of the Alliance members6 September 2016 // the European Parliament will be called on to vote the report on “Creating labour market conditions favourable for family-work balance”.

IF is partnering with 10 networks of NGOs and Local Authorities and since 2012 we have been working together to raise awareness about the daily challenges faced by women and men across the EU in reconciling their work, family and private life. We represent millions of children, adults and families across the EU, and we are calling on Members of European Parliament to cast a positive vote for this report.

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