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5th International Hydrocephalus Workshop
The Fifth International Hydrocephalus Workshop will be held from 20-23 May 2010, on the Island of Crete, Greece. The Hydrocephalus Workshop has the reputation of being an interactive congress where there is special emphasis on discussion and active exchange of ideas. The organizing committee plans a comprehensive schedule which will include advances in the understanding and management of both pediatric and adult hydrocephalus. There will be plenary lectures and both oral and poster presentations by the participants of the workshop. The abstract submission deadline and the early bird registration deadline is March 15, 2010. More information is available on the Hydrocephalus Workshop website. |
The world famous “Greek Hospitality” will be an integral part of the 5th International Hydrocephalus Workshop in Crete
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Primary prevention in Flanders, Belgium
In the Belgian region Flanders an estimated 120 children are born each year with neural tube defects. Scientific research shows that if a woman takes 0,4 mg of Folic Acid every day at least one month before she becomes pregnant and for 3 months during her pregnancy, she reduces the risk of having a baby with Spina Bifida or another neural tube defect by as much as 70%. So far there have been no Flemish prevention campaigns to ensure that women of childbearing age use the proper amount of folic acid in time. Parlementarian Tom Dehaene asked the Flemish Minister for Welfare, Public Health and Family, Jo Vandeurzen, about his plans. The minister acknowledges the importance of prevention initiatives and will investigate possible cooperation with the Ministry of Education with the aim to provide information to students. |
Parlementarian Tom Dehaene advocates for primary prevention of neural tube defects with Folic Acid in Flanders
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Defying disability
Carol Wanjira, 20, was born with Spina Bifida. Two decades ago, her father walked out on the family because of her disability. Today she is independent and takes care of her grandparents, proving him wrong against all odds. She performs household chores, prepares meals and does the laundry. Every week she catches a bus to town from Kawangware for wheelchair basketball training sessions. She is also a member of the Spina Bifida and Hydrocephalus Association of Kenya, SHAK, a support group within the IF project at Bethany Kids. Carol was one of the adult speakers at IF's African Workshop 2009 in Kenya. Read her story in the Daily Nation. |
Carol Wanjira lives a normal life and hopes to represent Kenya in international wheelchair basketball matches
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MEPs back human rights for disabled
MEPs on the Human Rights Committee have backed a potentially huge shift in the way Europe treats its 50 million disabled citizens. They backed EU membership of the UN Convention on the Rights of People with Disabilities that treats disability not as a social welfare issue but as a human rights issue and a legal issue. This is a step away from the current practice of treating disabled persons as objects of charity and social protection. If the convention is adopted into EU law it would give disabled people rights in areas like education, employment and transport. Parliament passed the Convention in April last year and called on governments to ratify it. Read more here. |
People with disabilities need to be involved in the implementation of the UNCRPD
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All disabled children have the right to live with their family
The Committee of Ministers of the Council of Europe (CoE) has recently adopted a text recommending that member states no longer place children with disabilities in institutional care and instead give preference to community living. States are urged to guarantee children with disabilities the same right to family life, education, health, social care and vocational training as all other children. Mechanisms should be established to involve children with disabilities and their families in the process of service development, as they are vital stakeholders. Several million children and adults with disabilities live in long-term care institutions in the 47 Council of Europe member states. Read more on the CoE website. |
All children have the right to participate in community living
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Do not extend the Groningen Protocol
Dutch paediatricians are suggesting to extend the Groningen Protocol with the criterion "future unbearable suffering", claiming that the current rules do not work. Doctors fear prosecution when they end the life of a newborn with severe disabilities who is not suffering unbearably at birth, but according to them will be in the near future. Both BOSK and IF have issued press releases to show their concern and disapproval. IF's position paper on the Groningen Protocol shows that the current rules are already discriminatory. Extending the rules is unacceptable. Read the article in the Belgium weekly Tertio.
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Negative perceptions about disabilities can influence life and death decision making
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