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IF's EU Contest - It's about you!
IF and Bayer Schering Pharma are planning to launch a second report about the prevention of Neural Tube Defects in 2011. In this second report we would like to include testimonials from people of all ages with Spina Bifida and/or from their parents, partners or friends. Many people are familiar with the medical description of Spina Bifida, and words like neural tube defect, congenital malformation, or birth defect. Yet there's more to your life than "having" Spina Bifida, or for family members or partners and friends to be "care takers". We would like you to show the world what it actually means to live with Spina Bifida. Tell us what it is that defines you or your relationship. After all, it's about you! IF welcomes entries from outside the EU too. Read more here.
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People with Spina Bifida and/or Hydrocephalus can live a full life with equal value to that of any other citizen
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Inequalities and multiple discrimination in access to health
The European Agency for Fundamental Rights (FRA) has issued a call for tender to collect information on the extent to which vulnerable groups may suffer from inequalities and multiple discrimination in access to health in the EU. More specifically the project will explore access to health among vulnerable groups at the intersection of age, gender and ethnic origin. The research will also include access to health among persons with disabilities. Promoting and protecting the rights of people with disabilities is a major objective in the European Union, but also internationally. People with disabilities often face difficulties when they try to use health services. In recent years, the phenomenon of multiple discrimination has been increasingly acknowledged, but to date little is known on the groups more likely to face it and the sectors concerned. Closing date of the call for tender is September 27, 2010. |
In its Communication on "Solidarity in Health" the European Commission invited FRA to collect information on health inequalities in the EU
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European Conference on Preconception Care
In 2010 Belgium will be one of the three Member States which holds the presidency of the EU Council for a period of 18 months. At this occasion PROCOP plans a European Conference on Preconception Care and Preconception Health in Brussels, 6–9 October. A provisional programme is availabe at the conference website. IF cooperates with PROCOP in this important project. It correlates with IF’s plans to work closer together with gynaecologists and obstetricians to assure good preconception and prenatal counselling. IF is a strong advocate of primary prevention through preconceptional intake of Folic Acid. Information in French is available here. |
The conference focuses on the importance of preconception care and the prevention of birth defects
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Making sense of inclusive education
Dr. Andrew Azzopardi, lecturer at the University of Malta, recently published a book which he edited, "Making Sense of Inclusive Education: Where Everyone Belongs", which brings together the views of stakeholders and researchers in the field. The idea behind the publication was to explore inclusive education from different points of view. In fact, contributors include academics and researchers, as well as a person who works for a state-funded agency which provides services to disabled people and their families, parent activists for the rights of persons with an intellectual disability, and people working directly in the education sector, such as administrators, teachers and learning support assistants. The book can be used by students and policy makers, and also includes Thinking Points for every Chapter to encourage discussion and reflection. |
“Our thinking needs to be different. Rather than focusing on the impairment alone, we need to look at the needs of different students" - Dr. Andrew Azzopardi
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Third session Conference of States Parties to the UNCRPD
The third session of the Conference of States Parties to the UN Convention on the Rights of Persons with Disabilities will be held September 1-3, 2010 at the United Nations Headquarters in New York. This session, under the theme: “Implementing the Convention through Advancing Inclusion of Persons with Disabilities”, will begin with the election of members of the Committee on the Rights of Persons with Disabilities and include substantive roundtable discussions and an interactive informal session with civil society. The European Disability Forum, in which IF holds membership, has been accredited to participate to this important conference. |
Currently 89 countries have ratified the UNCRPD and 146 countries have signed the convention
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Additional opportunities to prevent neural tube defects with Folic Acid fortification
The US Centers for Disease Control and Prevention (CDC) has published a CDC Grand Rounds report on Folic Acid Fortification. Fortification of flour and other staples with Folic Acid is a feasible, economical, safe, and effective public health policy to prevent NTDs worldwide. After mandatory fortification in 1998, NTD prevalence declined 30%-40% among the three largest racial and ethnic groups in the US. Nevertheless, Hispanic women continue to be at significantly greater risk for having a baby affected by an NTD. Fortifying corn masa flour may improve the intake of Folic Acid among Hispanics, while not contributing to higher Folic Acid intake in the general population. Nonfolate risk factors can also contribute to disparities in NTD prevalence and merit further study. Efforts are needed to evaluate the safety and effectiveness of fortification of corn masa flour in the United States and to expand fortification of staple foods across the globe. Read the CDC Grand Rounds report.
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Worldwide, 60 countries have legislation or decrees that mandate
fortification of one or more types of flour with either iron or folic
acid
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