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Register now for IF's 21st International Conference
Together with Spina Bifida Hydrocephalus Ireland (SBHI ) IF is organising it's 21st International Conference in Dublin, Ireland. A provisional programme and information about the speakers can be found on the conference website. Among the speakers will be paediatric neurosurgeon Dr. Benjamin Warf and Dr. Timothy Brei, a recognised expert in diagnosing and treating children with disabilities, who has Spina Bifida himself. There is an "early bird discount" if you register before 31 March 2010. The Citywest Hotel Dublin offers superb facilities and accommodation for conference visitors. |
Meet with people from the Spina Bifida Hydrocephalus community from all over the world to exchange views and information
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Parliamentary questions to European Commission about Neural Tube Defects
Portuguese Euro-parliamentarian Ilda Figueiredo is an active member of the Parliament’s Intergroup on disability rights. After a meeting with the Portuguese Association for Spina Bifida and Hydrocephalus, she submitted written questions to the European Commission about the need for the EU to take a more ambitious approach against Neural Tube Defects. She stressed the benefits of folic acid (vitamin B9) and asked the Commission to provide an overview of what studies regarding the fortification with folic acid are currently conducted. She also asked the Commission what measures it is considering to support EU countries in the area of preventative health and nutrition. Her questions to the European Commission further support the case also made by the report “Act against Europe's most common birth defects” which IF recently conducted together with Bayer HealthCare. |
MEP Ilda Figueiredo (Portugal, GUE), one of the vice-presidents of the European Parliament's Disability Intergroup
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Dame Tanni Grey-Thompson recommended for the UK House of Lords
Dame Tanni Grey-Thompson is Britain’s most successful Paralympian, with 11 gold medals in wheelchair racing
to her name from the Paralympics, and 7 gold medals from World Championships. She also set 30 world records throughout her career and won the London Marathon six times. She was born with Spina Bifida and first competed as a 15-year-old in the 100 metres at the Welsh junior national games in 1984. Since her retirement in May 2007, Dame Tanni Grey-Thompson has campaigned to raise the profile of disability athletics. Since September 2008 she has sat on the Board of Transport for London where she is Chair of the Corporate Governance Committee. Now she has been recommended to become a non-party-political peer in the House of Lords. |
Dame Tanni Grey-Thompson will sit on the crossbenches in the UK House of Lords
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Act against neural tube defects in Europe now!
The event in the European Parliament, co-organised by IF and Bayer Schering Pharma and hosted by MEPs Dr. Antoniya Parvanova, Ms. Edite Estrela and Ms. Ria Oomen-Ruijten was a huge success. A great number of stakeholders from all over Europe and Members of the European Parliament were impressed by the presentations from Pierre Mertens, Dr. Hermien van der Walle (Eurocat) and Petter Feuk, a young man with Spina Bifida. Eventhough it has been scientifically proven in 1991 that the use of Folic Acid can help to prevent Spina Bifida, the number of neural tube defects in Europe has not decreased since. All eyes are focussed on the European Parliament for measures to make this happen. More information.
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Pierre Mertens (IF) and Dr. Ralf Bannemerschult (Bayer) present the report "Act against Europe's most common birth defects"
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IF's EU workshop in Brussels
IF members from 12 European countries attended a workshop about lobbying. They came to Brussels to talk to their Members of European Parliament (MEPs) to encourage them to participate in the fight against Neural Tube Defects in Europe. They received information about the report, about possible solutions in their countries and how to approach their MEPs. All enjoyed this opportunity to meet members from other association. Many also discussed challenges they encountered in their organisations and solutions that were found. |
Andrew Wynd (SSBA, Scotland) and Petter Feuk (RBU, Sweden)
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IF supports CURE's medical aid in Haiti
The situation in Haiti, one of the poorest countries in the world, is dramatic after the earthquake on January 12. CURE International now has two teams of doctors working on the ground in Port au Prince to provide emergency medical care to victims of the earthquake. They have been operating non-stop to save lives and stabilize the most critically injured patients. The CURE team is coordinating the arrival of desperately needed medical supplies and will continue to bring in additional surgical teams in the days to come. IF is currently raising funds to support CURE's activities in Haiti. |
CURE teams work day and night, performing life-saving operations and providing care to the injured
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