Inscrivez vous maintenant à la 21ieme Conférence Internationale de IF

Avec l'Association spina bifida et d'hydrocéphalie Irlande (SBHI) IF organise sa 21ieme Conférence Internationale à Dublin, Irlande. Un programme provisoire et de l'information sur les conférenciers peuvent être trouvés sur le site Web de la conférence. Parmi les orateurs, il y a Dr. Benjamin Warf, neuro chirurgien en pédiatrie ainsi que Dr. Timothy Brei, un expert reconnu pour diagnostiquer et traiter les enfants avec des incapacités, ayant lui-même le spina bifida. Si vous vous enregistrez avant le 31 mars 2010, il y a un rabais. L'hôtel Citywest de Dublin offre des équipements superbes et du logement pour des visiteurs de la conférence .

Rencontrez les personnes de la communauté spina bifida et hydrocéphalie de partout à travers le monde pour échanger des points de vue et de l'information

The EU and social inclusion

Many groups of people in the European Union suffer from social exclusion, and for different reasons. This extends to employment where some people find it difficult to get a job. Groups of people can experience social exclusion for many reasons: because they have a physical disability which causes others to doubt their capacities, or because they have health problems that need daily attention. As an example of exclusion, people with disabilities represent one in six of the working age population in the EU, yet only 40% of disabled people have jobs. Promoting the full integration and participation of disadvantaged groups of people is a key element of EU policies – and not just employment policies. Read more on the EU website.

The European Social Fund (ESF) is supporting the sustainable integration of people with disabilities into the workforce

Senegal fortifies flour and edible oils

The West African country of Senegal became the 59th country to require flour fortification when it mandated that iron and folic acid be added to wheat flour. The country also set standards for adding vitamin A to vegetable oils, and it promotes the use of iodized salt as part of its strategy to combat nutrient deficiencies. In Senegal, during a West African Training of Trainers, millers, public health and regulatory staff discussed the various technical aspects of fortification and harmonization of procedures. The training was part of the Smarter Futures project in which IF participates. More information about food and flour fortification in Senegal is available on the FFI website.

Providing training to key players in national flour fortification programmes proves to be a successful strategy in Senegal

5th International Hydrocephalus Workshop

The Fifth International Hydrocephalus Workshop will be held from 20-23 May 2010, on the Island of Crete, Greece. The Hydrocephalus Workshop has the reputation of being an interactive congress where there is special emphasis on discussion and active exchange of ideas. The organizing committee plans a comprehensive schedule which will include advances in the understanding and management of both pediatric and adult hydrocephalus. There will be plenary lectures and both oral and poster presentations by the participants of the workshop. The abstract submission deadline and the early bird registration deadline is March 15, 2010. More information is available on the Hydrocephalus Workshop website.

The world famous “Greek Hospitality” will be an integral part of the 5th International Hydrocephalus Workshop in Crete

Primary prevention in Flanders, Belgium

In the Belgian region Flanders an estimated 120 children are born each year with neural tube defects. Scientific research shows that if a woman takes 0,4 mg of Folic Acid every day at least one month before she becomes pregnant and for 3 months during her pregnancy, she reduces the risk of having a baby with Spina Bifida or another neural tube defect by as much as 70%. So far there have been no Flemish prevention campaigns to ensure that women of childbearing age use the proper amount of folic acid in time. Parlementarian Tom Dehaene asked the Flemish Minister for Welfare, Public Health and Family, Jo Vandeurzen, about his plans. The minister acknowledges the importance of prevention initiatives and will investigate possible cooperation with the Ministry of Education with the aim to provide information to students.

Parlementarian Tom Dehaene advocates for primary prevention of neural tube defects with Folic Acid in Flanders

Defying disability

Carol Wanjira, 20, was born with Spina Bifida. Two decades ago, her father walked out on the family because of her disability. Today she is independent and takes care of her grandparents, proving him wrong against all odds. She performs household chores, prepares meals and does the laundry. Every week she catches a bus to town from Kawangware for wheelchair basketball training sessions. She is also a member of the Spina Bifida and Hydrocephalus Association of Kenya, SHAK, a support group within the IF project at Bethany Kids. Carol was one of the adult speakers at IF's African Workshop 2009 in Kenya. Read her story in the Daily Nation.

Carol Wanjira lives a normal life and hopes to represent Kenya in international wheelchair basketball matches

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